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Search: Posts Made By: koneal
Forum: Help and Resources for Hemangiomas 06-19-2013, 01:28 AM
Replies: 5
Views: 6
Posted By koneal
Also I have read great things about Dr. Drolet....

Also I have read great things about Dr. Drolet. Any advice would be greatly appreciated. Also, do you know of ANY kind of phace support group. Just would love to talk to another mom that knows what I...
Forum: Help and Resources for Hemangiomas 06-19-2013, 01:24 AM
Replies: 5
Views: 6
Posted By koneal
We did some research on best places for PHACE...

We did some research on best places for PHACE syndrome, Wisconsin and Cinncinnatti were the first ones to come up. I contacted both of them, Wisconsin called me back first. I am totally noticing that...
Forum: Help and Resources for Hemangiomas 06-18-2013, 01:50 AM
Replies: 5
Views: 6
Posted By koneal
PHACE Syndrome Tampa, FL

Hi my name is Kristyn. Three weeks after my daughter was born a large facial hemangioma grew on the left side of her face. She has been on propranolol since she was 4 weeks old, she is now 10 months...
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