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Search: Posts Made By: jkmorgan333
Forum: Help and Resources for Hemangiomas 01-17-2013, 01:15 PM
Replies: 7
Views: 8
Posted By jkmorgan333
My daughter had one of her hemangiomas removed 2...

My daughter had one of her hemangiomas removed 2 years ago when she was 18 months. She had been on propanolol for 6 or 8 months prior and we saw no improvement. We are very glad we went forward with...
Forum: Help and Resources for Hemangiomas 08-02-2012, 12:52 PM
Replies: 4
Views: 5
Posted By jkmorgan333
She's having it removed on Tuesday, 8/7 so they...

She's having it removed on Tuesday, 8/7 so they will be biopsying it then. Her derm, Moise Levy, will be viewing it during surgery and then sending it off to a lab to determine exactly what it is....
Forum: Help and Resources for Hemangiomas 07-30-2012, 08:10 PM
Replies: 4
Views: 5
Posted By jkmorgan333
dormant hemangioma?

My daughter was born with 2 hemangiomas on either side of her head. One was flat and the size of a dime and the other got to be a little bigger than a grape. She spent 8-10 months on propranolol and...
Forum: Help and Resources for Hemangiomas 02-14-2011, 12:36 PM
Replies: 16
Views: 17
Posted By jkmorgan333
Our daughter had two hemangiomas on the side of...

Our daughter had two hemangiomas on the side of her head behind either ear. They were about the same size as Millie's. When she was about 6 weeks old, our doctor ordered an ultrasound on her head to...
Forum: Help and Resources for Hemangiomas 02-09-2011, 06:52 PM
Replies: 3
Views: 4
Posted By jkmorgan333
My husband and I both worked the entire time our...

My husband and I both worked the entire time our daughter was on propranolol. We only had to give it to her twice a day so it was easy to just keep it at home and give it to her at morning and night....
Forum: Help and Resources for Hemangiomas 01-14-2011, 01:01 PM
Replies: 11
Views: 12
Posted By jkmorgan333
My daughter was put on propranolol at 10 months...

My daughter was put on propranolol at 10 months after her H stopped growing. In hindsight, I wish we had started it the first time we saw the pediatric derm when she was 4 months old. In the six...
Forum: Help and Resources for Hemangiomas 11-30-2010, 06:56 PM
Replies: 12
Views: 13
Posted By jkmorgan333
Our daughter has had a host of medical problems...

Our daughter has had a host of medical problems too. Preemie, time in the NICU, hole in her heart, developmental delays, hemangiomas-it's tough and I know your ride is just beginning. We're still...
Forum: Help and Resources for Hemangiomas 10-18-2010, 08:04 PM
Replies: 3
Views: 4
Posted By jkmorgan333
If you Google "side effects of...

If you Google "side effects of Propranolol" you can find a host of results. One problem is that there is not a whole lot of information about the side effects of the drug on children since it's not...
Forum: Help and Resources for Hemangiomas 10-11-2010, 08:56 PM
Replies: 11
Views: 12
Posted By jkmorgan333
Our daughter gets 4 mL (not sure how that...

Our daughter gets 4 mL (not sure how that converts to mg) per day. 2mL in the morning and 2 in the evening. She used to get 4.5 (2.25 twice per day), but since we saw such improvement, we've backed...
Forum: Help and Resources for Hemangiomas 10-06-2010, 01:39 PM
Replies: 10
Views: 11
Posted By jkmorgan333
Does anyone know how common it is for insurance...

Does anyone know how common it is for insurance to not cover surgery? We will probably have our daughter's H removed in December, and I just assumed insurance would cover it. It's not causing...
Forum: Help and Resources for Hemangiomas 10-05-2010, 12:57 PM
Replies: 5
Views: 6
Posted By jkmorgan333
We haven't seen any re-growth. They are just a...

We haven't seen any re-growth. They are just a little redder. The gray flecks that were once there seem to have gotten smaller. It's been about a month since our daughter has been on a lower dose and...
Forum: Help and Resources for Hemangiomas 10-04-2010, 02:53 PM
Replies: 5
Views: 6
Posted By jkmorgan333
My daughter was on propranolol from 10-14 months...

My daughter was on propranolol from 10-14 months and then we lowered her dose. They have not grown, but they are redder than before. She's 15 months now, and we're holding steady at 2ml twice a day,...
Forum: Help and Resources for Hemangiomas 10-04-2010, 02:51 PM
Replies: 9
Views: 10
Posted By jkmorgan333
When my daughter started she was about 20 pounds...

When my daughter started she was about 20 pounds and taking 2.25ml two times per day. She was 10 months old. We did not notice quick results like others have. It was very gradual over about a 3 month...
Forum: Help and Resources for Hemangiomas 09-16-2010, 02:32 PM
Replies: 12
Views: 13
Posted By jkmorgan333
Wow, she looks great! Yay, for good doctors and...

Wow, she looks great! Yay, for good doctors and surgeons.
Forum: Help and Resources for Hemangiomas 09-16-2010, 02:31 PM
Replies: 3
Views: 4
Posted By jkmorgan333
tawnyacooke- I just saw your pictures on your...

tawnyacooke- I just saw your pictures on your post. My daughter's H on her head is almost exactly the same size as the one your daughter had. I'm glad to know that surgery turned out so well. We'll...
Forum: Help and Resources for Hemangiomas 09-16-2010, 02:29 PM
Replies: 10
Views: 11
Posted By jkmorgan333
What beautiful daughters! I'm so glad the surgery...

What beautiful daughters! I'm so glad the surgery turned out so well!
Forum: Help and Resources for Hemangiomas 09-15-2010, 07:46 PM
Replies: 3
Views: 4
Posted By jkmorgan333
Saggy skin

My daughter has 2 hemangiomas at the base of either side of her skull. She's been on propranolol since late May and she's 14 months old now. We've seen significant improvement on the hemangiomas...
Forum: Help and Resources for Hemangiomas 09-14-2010, 09:27 PM
Replies: 12
Views: 13
Posted By jkmorgan333
My daughter started taking propranolol in late...

My daughter started taking propranolol in late May when she was 10.5 months old. We saw a dramatic decrease in both of her hemangiomas which are on either side of the base of her skull. The smallest...
Forum: Help and Resources for Hemangiomas 07-14-2010, 04:47 PM
Replies: 9
Views: 10
Posted By jkmorgan333
Our daughter has two on either side of her head...

Our daughter has two on either side of her head just behind her ears, and they grew the most during months 3-4 but it continued to slowly grow until she was about 6 months old.
Forum: Help and Resources for Hemangiomas 07-08-2010, 07:05 PM
Replies: 10
Views: 11
Posted By jkmorgan333
Our insurance covers it. (Blue cross Blue Shield)...

Our insurance covers it. (Blue cross Blue Shield) I never had to make any phone calls or pleas for them to do so. Our co-pay is about $10 a month for it.
Forum: Help and Resources for Hemangiomas 07-08-2010, 06:59 PM
Replies: 13
Views: 14
Posted By jkmorgan333
My daughter started propranolol once her...

My daughter started propranolol once her hemangiomas were out of the growth phase as well. She started 6 weeks ago when she was 10.5 months old. We've seen pretty good results, and after seeing her...
Forum: Help and Resources for Hemangiomas 07-01-2010, 02:58 PM
Replies: 4
Views: 5
Posted By jkmorgan333
Our daughter is on propranolol and she will be 1...

Our daughter is on propranolol and she will be 1 next week. We just started it about 5 weeks ago. Her hemangiomas were already starting to show flecks of gray and involution before we started the...
Forum: Help and Resources for Hemangiomas 06-23-2010, 02:21 PM
Replies: 4
Views: 5
Posted By jkmorgan333
Your daughter is gorgeous! My daughter has a...

Your daughter is gorgeous!
My daughter has a compound H almost identical to your daughter's except my daughter's H is on the side of her head. DD's grew the most during months 3-4, and it got to be...
Forum: Help and Resources for Hemangiomas 06-21-2010, 01:02 PM
Replies: 11
Views: 12
Posted By jkmorgan333
I second the positive results from propranolol....

I second the positive results from propranolol. We started our daughter on it when she was 10.5 months old, and she's been on it for a month. It was purely for cosmetic reasons as the two she has are...
Forum: Help and Resources for Hemangiomas 06-17-2010, 12:55 PM
Replies: 6
Views: 7
Posted By jkmorgan333
Our experience was similar to mperron's...

Our experience was similar to mperron's experience. No hospital stay, electrocardiogram, and gradual increase on dose. We went in for a followup a week after DD started the meds to check her BP and...
Showing results 1 to 25 of 34

 
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