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Search: Posts Made By: fiafo
Forum: Youth and Teen Support 04-17-2014, 10:08 PM
Replies: 6
Views: 7
Posted By fiafo
Hi mike My just turned 3 year old has yet to ask...

Hi mike
My just turned 3 year old has yet to ask any questions. Her older sibling asked what was on her face a few times last year and I just replied it was a birthmark and some people are born with...
Forum: Youth and Teen Support 04-02-2014, 10:21 PM
Replies: 6
Views: 7
Posted By fiafo
Hi, I'm a 34 year old woman with a cavernous...

Hi, I'm a 34 year old woman with a cavernous venous malformation on my neck and jaw. From my point if view of being a young child growing up with the condition, and now being a mum of a 2 year old...
Forum: Port Wine Stain Help and Resources 10-19-2011, 01:05 PM
Replies: 62
Views: 6,101
Posted By fiafo
I have a vascular malformation (venous) on left...

I have a vascular malformation (venous) on left neck and left jaw and scrolling through the AVM forum i had previously thought that it was such a coincidence that most lesions were left sided! so im...
Forum: Adults Living with Birthmarks 10-18-2011, 09:40 AM
Replies: 7
Views: 8
Posted By fiafo
Thanks for reply! A couple of things you said...

Thanks for reply!

A couple of things you said have just hit home to me..

my hearing in my left side (same side as VM) is almost non-existent as well.. thats exactly what i do too.. lie on my good...
Forum: Adults Living with Birthmarks 10-16-2011, 10:14 PM
Replies: 7
Views: 8
Posted By fiafo
Hi Kaykay, Is your VM on your neck? I think that...

Hi Kaykay,

Is your VM on your neck? I think that because of its location my VM is affected so much by everyday things.
It is always slightly swollen but it will swell out immediately if im talking...
Forum: Adults Living with Birthmarks 10-12-2011, 01:15 PM
Replies: 7
Views: 8
Posted By fiafo
Any members with vascular malformation from Ireland/UK?

Hi, Im Niamh, 32 year old female from North of Ireland, with vascular malformation on left side of my neck, and a further VM on my left jaw that developed after surgery 11 years ago. After a bad old...
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