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Search: Posts Made By: jettmom
Forum: Port Wine Stain Help and Resources 08-01-2008, 07:02 PM
Replies: 5
Views: 1,729
Posted By jettmom
Anyone have experience with perfecta laser?

I have not posted in a while. My son Jett has PWS on his legs, trunk, back, and chest. My husband and I were very skeptical as to whether these treamtments were working or not until his last...
Forum: Port Wine Stain Help and Resources 05-14-2008, 06:32 PM
Replies: 2
Views: 1,128
Posted By jettmom
My son has PWS on his chest, back, and both legs....

My son has PWS on his chest, back, and both legs. His right leg and footare bigger in both girth and length. We took him to an orthopedic surgeon when he was one who told us that the difference was...
Forum: Port Wine Stain Help and Resources 01-14-2008, 04:32 PM
Replies: 5
Views: 1,568
Posted By jettmom
I have always been told to use vaseline for 5...

I have always been told to use vaseline for 5 days and then nothing as long as there are no blisters/complications
Forum: Port Wine Stain Help and Resources 01-13-2008, 02:19 PM
Replies: 3
Views: 1,000
Posted By jettmom
Considering relocating to Dallas area

We are considering relocating to Dallas from Phoenix to be closer to our family. My son has extensive PWS on his chest, back, and legs. He has already had 6 treatments and the doctor does not know...
Forum: Port Wine Stain Help and Resources 10-26-2007, 07:13 PM
Replies: 1
Views: 1,130
Posted By jettmom
Confused

My son Jett has PWS on his legs, chest and back. He has had 5 treatments and they have only been treating his legs. We asked for the 5th treatment if they would do his chest and back because we...
Forum: Port Wine Stain Help and Resources 10-26-2007, 06:30 PM
Replies: 3
Views: 1,260
Posted By jettmom
We went through the same thing. My son has PWS on...

We went through the same thing. My son has PWS on his chest, back, and legs. At first it got denied, then after an appeal from our doctor they approved it. I understand how it feels. I was...
Forum: Port Wine Stain Help and Resources 03-23-2007, 07:41 PM
Replies: 3
Views: 1,396
Posted By jettmom
Results?

How many treatments did it take for you to notice a lightening of the PWS? Where was it, and how dark?

My son has extensive PWS on chest, back and legs. He is going in for his 2nd treatment next...
Forum: Port Wine Stain Help and Resources 02-16-2007, 09:58 PM
Replies: 11
Views: 2,846
Posted By jettmom
heyjude, are you seeing results on your sons PWS?...

heyjude,
are you seeing results on your sons PWS? How many treatments did they project he would need?
Forum: Port Wine Stain Help and Resources 02-15-2007, 02:23 PM
Replies: 11
Views: 2,846
Posted By jettmom
Thank you everybody for your replies. It makes me...

Thank you everybody for your replies. It makes me feel much better knowing that the frequency of treatments really varies. At first my dr told me how important it was that my son gets treatments...
Forum: Port Wine Stain Help and Resources 02-15-2007, 02:21 PM
Replies: 11
Views: 2,846
Posted By jettmom
Hi Jimmy, First off I want to let you know that...

Hi Jimmy,

First off I want to let you know that I know how stressful this can all be. There is so much information out there, it can be overwhelming. I see Dr. Hansen at Phoenix Children's Hospital....
Forum: Port Wine Stain Help and Resources 02-03-2007, 05:44 PM
Replies: 11
Views: 2,846
Posted By jettmom
Treatment Frequency

My son is 7 months old and has had 1 treatment. The dermatologist is predicting that he will need about 15 treatments and has recommended that he receive treatments every 8 weeks. The scheduler in...
Forum: Port Wine Stain Help and Resources 10-28-2006, 01:58 AM
Replies: 2
Views: 1,313
Posted By jettmom
My son is 4 months old and has PWS on his chest,...

My son is 4 months old and has PWS on his chest, back, and both legs. They said that his treatments would last one hour each session.
Forum: Port Wine Stain Help and Resources 10-25-2006, 02:46 PM
Replies: 2
Views: 1,313
Posted By jettmom
Laser Treatment-What to expect

After a battle with the insurance company, my son has finally been approved for laser treatments! I was wondering if I could get advice from those of you who have received laser treatments yourselves...
Forum: Port Wine Stain Help and Resources 09-07-2006, 03:01 PM
Replies: 13
Views: 2,392
Posted By jettmom
Do you mind if I ask who your daughter is seeing...

Do you mind if I ask who your daughter is seeing at Texas Children's? Is it Dr. Levy?
Forum: Port Wine Stain Help and Resources 09-07-2006, 03:14 AM
Replies: 3
Views: 1,202
Posted By jettmom
Insurance Denial

My sons laser treatments just got denied by the insurance stating that it was a cosmetic procedure. Has anyone had this experience, or succeeded in appealing this denial? How do they sleep at night???
Forum: Port Wine Stain Help and Resources 09-07-2006, 02:43 AM
Replies: 4
Views: 1,341
Posted By jettmom
when and where is the conference

when and where is the conference
Forum: Port Wine Stain Help and Resources 08-21-2006, 07:46 PM
Replies: 13
Views: 2,392
Posted By jettmom
Dr. Hansen at Phoenix Children's Hospital

Dr. Hansen at Phoenix Children's Hospital
Forum: Port Wine Stain Help and Resources 08-21-2006, 07:06 PM
Replies: 13
Views: 2,392
Posted By jettmom
I called the doctor and the laser is the V-Beam...

I called the doctor and the laser is the V-Beam pulse dye laser
Forum: Port Wine Stain Help and Resources 08-21-2006, 05:56 PM
Replies: 13
Views: 2,392
Posted By jettmom
Wow! Thank you for the prompt responses. The...

Wow! Thank you for the prompt responses. The treatments are laser, but I am not sure what kind. Luckily, the pediatric dermatologist I am seeing is world reknown and I feel comfortable with his...
Forum: Port Wine Stain Help and Resources 08-21-2006, 03:21 AM
Replies: 13
Views: 2,392
Posted By jettmom
Newborn w/ PWS in Phoenix

Hi! My 2 mo old son was born with extensive PWS on the chest, back, buttock, and both legs. They even extend to the soles of his feet. They were very remarkable at birth and over the last two months...
Showing results 1 to 20 of 20

 
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