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Posts Made By:
momof3inpa2009
Forum:
Help and Resources for Hemangiomas
08-31-2011, 01:34 AM
Replies:
24
? About Topical Timolol for hemangioma
Views:
25
Posted By
momof3inpa2009
My daughter is now on the timololol. It seems to...
My daughter is now on the timololol. It seems to keep the swelling down.
Forum:
Help and Resources for Hemangiomas
08-31-2011, 01:33 AM
Replies:
9
New Here
Views:
10
Posted By
momof3inpa2009
For us we noticed a change right away and then...
For us we noticed a change right away and then nothing...I was getting so irritated and didn't know why it wasn't working. But slowly it did work. And it looks so much better to the point people have...
Forum:
Help and Resources for Hemangiomas
08-31-2011, 01:30 AM
Replies:
8
Sorry for Repost, Beter pic. Is this the start of Hemangioma?
Views:
9
Posted By
momof3inpa2009
as said earlier go to a pediatric opthamologist....
as said earlier go to a pediatric opthamologist. my little girls started out looking "similar" and it was right above the eye in the same spot where your son's is, but at the top not the bottom. We...
Forum:
Help and Resources for Hemangiomas
08-31-2011, 01:25 AM
Replies:
8
Before & After Surgery Pictures
Views:
9
Posted By
momof3inpa2009
amazing!!! beautiful!!!
amazing!!! beautiful!!!
Forum:
Help and Resources for Hemangiomas
03-26-2011, 01:31 AM
Replies:
10
Will my subsequent children have hemangioma?
Views:
11
Posted By
momof3inpa2009
It seems hemangiomas affect more girls than boys....
It seems hemangiomas affect more girls than boys. I really wonder why this is. I really wish they would figure out a connection and what causes hemangiomas. I'm very interested in finding out.
Forum:
Help and Resources for Hemangiomas
03-26-2011, 01:26 AM
Replies:
6
Finally!
Views:
7
Posted By
momof3inpa2009
she is a cutie! i'm glad too that you found help!
she is a cutie! i'm glad too that you found help!
Forum:
Help and Resources for Hemangiomas
03-26-2011, 01:25 AM
Replies:
10
After propranolol what does skin look like?
Views:
11
Posted By
momof3inpa2009
Same thing here. My daughter's is on her left...
Same thing here. My daughter's is on her left eyebrow and it gets puffy from time to time.....In fact she was completely weaned off of propanolol for about a week and her H got a bit puffy and we...
Forum:
Help and Resources for Hemangiomas
03-22-2011, 11:07 PM
Replies:
33
5 week old with forehead hemangiona-please help!
Views:
34
Posted By
momof3inpa2009
I will try to PM you my email
I will try to PM you my email
Forum:
Help and Resources for Hemangiomas
03-22-2011, 06:21 PM
Replies:
33
5 week old with forehead hemangiona-please help!
Views:
34
Posted By
momof3inpa2009
Well I was just coming in to update again...we...
Well I was just coming in to update again...we are not having any luck with weaning....Lexi is back on one dose again. Her hemangioma is getting bigger again. Phoenixihc...I would love to talk with...
Forum:
Help and Resources for Hemangiomas
03-09-2011, 06:35 PM
Replies:
8
Anyone not successful on Propranolol?
Views:
9
Posted By
momof3inpa2009
Yes I agree I think it helps the deep ones more...
Yes I agree I think it helps the deep ones more than the other ones. I have heard though that it takes the color from the strawberry ones. Good luck to you as well. Hugs!
Forum:
Help and Resources for Hemangiomas
03-09-2011, 01:20 PM
Replies:
7
We're back! Update!
Views:
8
Posted By
momof3inpa2009
Congrats and I am glad she is doing great!
Congrats and I am glad she is doing great!
Forum:
Help and Resources for Hemangiomas
03-09-2011, 01:18 PM
Replies:
8
Anyone not successful on Propranolol?
Views:
9
Posted By
momof3inpa2009
I was discouraged at first. In the hospital we...
I was discouraged at first. In the hospital we saw a change right away, it was a small change but we noticed it right away so I got HIGH hopes. But when we went home it was a few months and I didn't...
Forum:
Help and Resources for Hemangiomas
03-09-2011, 01:12 PM
Replies:
4
Propranolol brand?
Views:
5
Posted By
momof3inpa2009
You can get it flavored. We flavor ours with...
You can get it flavored. We flavor ours with strawberry mint or bubblegum mint
Forum:
Help and Resources for Hemangiomas
03-09-2011, 01:08 PM
Replies:
1
Just an update!
Views:
2
Posted By
momof3inpa2009
Just an update!
Hi everyone I just wanted to come in and do an update. I know what it's like being a "newbie" on this site and other sites and looking for those success stories and "updates" from people so I wanted...
Forum:
Help and Resources for Hemangiomas
03-09-2011, 01:00 PM
Replies:
5
Propranolol causes diabetes!
Views:
6
Posted By
momof3inpa2009
I know while taking propanolol my daughter had to...
I know while taking propanolol my daughter had to have weekly visits to the pedi's office for checking her sugar, etc. She never had any problems thus far. I know it can "lower" your sugar and you...
Forum:
Help and Resources for Hemangiomas
03-09-2011, 12:57 PM
Replies:
33
5 week old with forehead hemangiona-please help!
Views:
34
Posted By
momof3inpa2009
Hey phoenixihc - your daughter's deep hemangioma...
Hey phoenixihc - your daughter's deep hemangioma under her eye is there just some extra skin there now? My daughter has one above her eye on eyebrow and today is actually day 3 of no propanolol. We...
Forum:
Help and Resources for Hemangiomas
12-13-2010, 02:35 AM
Replies:
20
New to site info needed please help
Views:
21
Posted By
momof3inpa2009
So true about "I can only imagine how huge...
So true about "I can only imagine how huge it would have gotten." I could not agree more! We have had trouble weaning my daughter off of the propanolol because the H puffs up again. My daughter also...
Forum:
Help and Resources for Hemangiomas
12-12-2010, 02:26 AM
Replies:
8
5 week old starting propranolol
Views:
9
Posted By
momof3inpa2009
I've never heard of the insominia side effect....
I've never heard of the insominia side effect. But to answer your question -my daughter started around 5 months old and she is now almost 16 months, no side effects other than fussiness and dizziness...
Forum:
Help and Resources for Hemangiomas
12-12-2010, 02:22 AM
Replies:
4
sibling upset by insensitive comments
Views:
5
Posted By
momof3inpa2009
You have a sweet daughter who is quite protective...
You have a sweet daughter who is quite protective and that is great. My almost 5 year old daughter has prayed every night for months "please help lexi's bumpy go down and go away." children are just...
Forum:
Adults Living with Birthmarks
12-12-2010, 02:19 AM
Replies:
4
BORN WITH GIANT HAIRY NEVUS, now living with huge scars..:(
Views:
5
Posted By
momof3inpa2009
You said the perfect words: "I know all this...
You said the perfect words: "I know all this stuff." People can give you advice after advice, advice I'm sure you already know you should be doing and you probably wish you could but you can't help...
Forum:
Living with a birthmark - my story
12-12-2010, 02:16 AM
Replies:
4
Pizza Face
Views:
196
Posted By
momof3inpa2009
I hope you can find what you need and are looking...
I hope you can find what you need and are looking for. It is so hard not to worry about what others say or think so I can't tell you "don't do that!" lol I am not even in your situation and I am...
Forum:
Help and Resources for Hemangiomas
12-12-2010, 01:56 AM
Replies:
20
New to site info needed please help
Views:
21
Posted By
momof3inpa2009
As I stated in my blog...I described my...
As I stated in my blog...I described my daughter's as looking like a blind pimple. I was just reading my blog and looking at old pictures and I'm just shocked at the differences in her from then...
Forum:
Help and Resources for Hemangiomas
12-12-2010, 01:19 AM
Replies:
20
New to site info needed please help
Views:
21
Posted By
momof3inpa2009
OMG I cannot believe we ran across each other...
OMG I cannot believe we ran across each other lol!!! My daughters looked like that in the beginning!!!! I didn't post many pictures on the blog, I am leery of posting pictures online. But yeah they...
Forum:
Help and Resources for Hemangiomas
12-11-2010, 05:19 PM
Replies:
20
New to site info needed please help
Views:
21
Posted By
momof3inpa2009
reply
That is kind of where my daughter's deep hemangioma is. I really haven't come across anyone yet that has one where my daughter's is. If it's by her eye and gets large enough normally derms or...
Forum:
Help and Resources for Hemangiomas
12-11-2010, 05:14 PM
Replies:
7
propranolol-how long did it take?
Views:
8
Posted By
momof3inpa2009
Sioban-- No, no change in dose. She has never had...
Sioban--
No, no change in dose. She has never had a increase in her dose yet. I know that's odd, I actually questioned this with the doctors. But...what they are doing is: She is at the age of...
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