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Search: Posts Made By: teardrop2
Forum: Port Wine Stain Help and Resources 01-13-2011, 02:57 PM
Replies: 8
Views: 9
Posted By teardrop2
It is hard to recommend, as I will be, and I am...

It is hard to recommend, as I will be, and I am in similar shoes....

But if it is so obvious that people think it is "an abouse", I would say something to educate people...respectively, realisticaly...
Forum: Port Wine Stain Help and Resources 11-23-2010, 02:17 PM
Replies: 7
Views: 8
Posted By teardrop2
The same from me - also thenks for reminding me...

The same from me - also thenks for reminding me that, though many of my true friends tried to help me see that, I am too often stuck in internet researches, and forgetting live passing by...
Forum: Port Wine Stain Help and Resources 11-23-2010, 02:15 PM
Replies: 7
Views: 8
Posted By teardrop2
Not worried father, I got "hundreds" of...

Not worried father, I got "hundreds" of second opinions. As I am a natural and mother "fighter" I asked many experts....it is just our insurance sistem, that doesnt break us through....I will...
Forum: Port Wine Stain Help and Resources 11-20-2010, 09:46 AM
Replies: 7
Views: 8
Posted By teardrop2
THANK YOU NO MORE WORRIED FATHER!!! Your words...

THANK YOU NO MORE WORRIED FATHER!!! Your words have incouraged me alot. My son is 4 months old, with similar pws on left side.

I think I am on this road too....just one thing is, that doesnt help me...
Forum: Port Wine Stain Help and Resources 11-19-2010, 04:52 AM
Replies: 5
Views: 6
Posted By teardrop2
Missy, I also sent a question to Mr. Nelson, but...

Missy, I also sent a question to Mr. Nelson, but he havent replied me yet. It is now around a 3 weeks to 1 month...I would wait of course furtherly, I understand he has so much work, I just wouldnt...
Forum: Port Wine Stain Help and Resources 10-26-2010, 03:42 PM
Replies: 7
Views: 8
Posted By teardrop2
My child has a PWS on his face, it is surely PWS....

My child has a PWS on his face, it is surely PWS. And it also becomes white when I press it. I think this is normal, because capilares on PWS are wider than normally, and so they hold more blood....
Forum: Port Wine Stain Help and Resources 10-26-2010, 03:38 PM
Replies: 9
Views: 10
Posted By teardrop2
Yes, I understand the situation , perfectly. I am...

Yes, I understand the situation , perfectly.
I am so sad sometimes. of course glad imenslly that isnt something else additionally, but sad that nature can give such sign, mark to a person on...
Forum: Port Wine Stain Help and Resources 09-13-2010, 04:59 AM
Replies: 5
Views: 6
Posted By teardrop2
how often testing child for glaucoma

I would like to ask parents with babies who have PWS, how often were they advised to be tested for glaucoma? In our case, they tested at birth, and now my local pediatrist gave me the testing at 1...
Forum: Port Wine Stain Help and Resources 09-10-2010, 08:41 PM
Replies: 3
Views: 4
Posted By teardrop2
please help

please is there anyone who can help me in the dilemma -

my son has PWS 1/3 of face, no SW, no GLAUCOMA for now. The doctor is determined to start treating PWS only at 2, he says because of general...
Forum: Port Wine Stain Help and Resources 09-08-2010, 11:49 AM
Replies: 9
Views: 10
Posted By teardrop2
i dont want to judge or be on any poit or another...

i dont want to judge or be on any poit or another - i would say everywhere is difficult to have a PWS wether on the face or any other part of the body, but the truth is also, that face is one part of...
Forum: Port Wine Stain Help and Resources 09-07-2010, 11:51 AM
Replies: 4
Views: 5
Posted By teardrop2
he said he would begin with some months,but he is...

he said he would begin with some months,but he is moving from greece and he advised me Berlin Vascular Malformation Center.
Forum: Port Wine Stain Help and Resources 09-06-2010, 08:47 PM
Replies: 4
Views: 5
Posted By teardrop2
Thank you Missy! i havent yet asked him, just Mr....

Thank you Missy! i havent yet asked him, just Mr. Tombris. I will certainly!!!;)
Forum: Port Wine Stain Help and Resources 09-06-2010, 07:20 AM
Replies: 4
Views: 5
Posted By teardrop2
any prove that erlier is better

hello,

i investigated on my own and i found also the article on this page that early start of the treatmrnt of PWS gives better results. But now i am searching for treatment for him, and our doctor...
Forum: Port Wine Stain Help and Resources 09-03-2010, 02:22 PM
Replies: 6
Views: 7
Posted By teardrop2
What is ECJ?

What is ECJ?
Forum: Port Wine Stain Help and Resources 09-03-2010, 02:21 PM
Replies: 6
Views: 7
Posted By teardrop2
Thanks for links. I will check. I dont know now...

Thanks for links. I will check.

I dont know now what to do. I will try to get a SECOND OPINION from any other doctor in Europe. May be then the insurance would pay? does anybody know how these...
Forum: Port Wine Stain Help and Resources 09-03-2010, 02:17 PM
Replies: 9
Views: 10
Posted By teardrop2
Thank you for good news, really! one thing i...

Thank you for good news, really!

one thing i would just add is, that, when the risk of syndromes - STW or KTS is denied, is really the first, most big relief....but then still the PWS resists, and...
Forum: Port Wine Stain Help and Resources 08-28-2010, 10:17 AM
Replies: 6
Views: 7
Posted By teardrop2
Thank you Missy. We would go also to some other...

Thank you Missy. We would go also to some other country until the age of 2, because of the lenght of the repeated procedure, it is financially impossible for us to go so many times a long distance,...
Forum: Port Wine Stain Help and Resources 08-26-2010, 06:47 PM
Replies: 0
Views: 1
Posted By teardrop2
befor and after photos (babies)

Can anyone advise me or send the links of before-after photos of babies with PWS? I do not find many, just some...thank you in advance!
Forum: Port Wine Stain Help and Resources 08-26-2010, 01:20 PM
Replies: 6
Views: 7
Posted By teardrop2
treatment for the baby in Europe or Worldwide LATER at home country

Hello,
i somehow recovered from the first shock, of realising my newborn son, having PWS. He has it 1/4 of the face in the area of cheek, upper lip, ending under the eye and going a bit into the...
Forum: Port Wine Stain Help and Resources 07-17-2010, 01:41 PM
Replies: 6
Views: 7
Posted By teardrop2
that is my main questioning too. To me doctors...

that is my main questioning too. To me doctors said, that the child should begin at 2 years....they said it is the treat of general anestesia, but on the other hand i have heard that there is a...
Forum: Port Wine Stain Help and Resources 07-11-2010, 02:50 PM
Replies: 3
Views: 4
Posted By teardrop2
newborn baby boy with PWS on almost half face

hello to all who we suffer together, each in his own way, the heavy load of birthmarks....

4 days ago, i gave birth to our second son, baby boy...we were so happy cause nothing seemed wrong...he...
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