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Search: Posts Made By: Cinderella22
Forum: AVM Help and Resources 09-03-2008, 02:55 PM
Replies: 3
Views: 1,303
Posted By Cinderella22
Wrong Diagnosis

Just wanted to update, I have always been told(15 yrs.) that what was in my entire left arm was AV Malformations. I e-mailed the asked the experts Dr. Rosen and sent him my MRI disc, I was told...
Forum: AVM Help and Resources 08-18-2008, 03:21 AM
Replies: 10
Views: 2,171
Posted By Cinderella22
I've heard of Dr. Yakes all over this forum and...

I've heard of Dr. Yakes all over this forum and have from what I've heard he's seemed to have helped countless people. I got Dr. Rosen from the ask the experts page on this website, I sent him an...
Forum: AVM Help and Resources 08-02-2008, 10:06 PM
Replies: 3
Views: 1,509
Posted By Cinderella22
Post Hi I'm 30 yrs. old and I have AVM'S from my left...

Hi I'm 30 yrs. old and I have AVM'S from my left shoulder down and that is a reallly good question. Every Dr. visit I've had my pulse has been 100 or more. I did read on website AVM's can put a...
Forum: AVM Help and Resources 07-30-2008, 03:54 AM
Replies: 10
Views: 2,171
Posted By Cinderella22
Question Any one with AVM's of the arm and hand?

I'm 30 yrs. old with AVM's of my entire left arm and half of my hand and was wondering if anyone else suffers the same? I e-mailed the asked the experts Dr. Rosen and got a response witin 6 hrs. to...
Forum: AVM Help and Resources 07-10-2008, 03:53 AM
Replies: 2
Views: 1,248
Posted By Cinderella22
Thank you for your response you are right I'm a...

Thank you for your response you are right I'm a first time mom and I learned quick about the whole "mothers intuition" deal!! He goes for his 12month wellness visit in the morning I'll ask them...
Forum: AVM Help and Resources 07-09-2008, 04:29 AM
Replies: 1
Views: 1,004
Posted By Cinderella22
Smile You All Are Awesome!!!

As I sit here and read through some of these stories I am just AMAZED at what AWESOME people I have stumbled across, I can't beleive I found a website like this!!! Just knowing you're not alone is...
Forum: AVM Help and Resources 07-09-2008, 02:13 AM
Replies: 2
Views: 1,248
Posted By Cinderella22
Question Are Vascular Malformations Hereditary?

Sorry to have posted soo much today. I've just been thinking maybe I'm jumping to conclusions I don't know, anyways my son just turned 1 yesterday (woo hoo) since the day he was born he has had a...
Forum: AVM Help and Resources 07-08-2008, 03:27 PM
Replies: 2
Views: 1,287
Posted By Cinderella22
Post Need to find a doc not so far away!?!

I live in TN. with AV Malformations of the left arm and hand and all of the DR. I found seem to be pediatric docs which is great but im 30 yrs. old was just wondering if any one knew of someone a...
Forum: AVM Help and Resources 07-08-2008, 02:27 PM
Replies: 1
Views: 1,036
Posted By Cinderella22
Question Confused About Ins. Coverage!

I was forced to leave my job when AV Malformations grew dramatically with my pregnancy last year and I'm left without health insurance I fighting to find affordable coverage anyways was just curious...
Forum: AVM Help and Resources 07-08-2008, 02:01 AM
Replies: 3
Views: 1,370
Posted By Cinderella22
Unhappy Need Info Please!!!

A-V Malformations from left shoulder to finger tips, diagnosed at 5yrs. old Dr. have called them everything. I've had 9 surgeries and an ulna nervre graft.... with no sucsess!! Now I'm hoplessly...
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