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Search: Posts Made By: Sam's Mom
Forum: Help and Resources for Hemangiomas 10-28-2010, 02:12 PM
Replies: 9
Views: 10
Posted By Sam's Mom
My son is being treated at Sick Kid's for his...

My son is being treated at Sick Kid's for his parotid and beard hemangioma. While the parotid part was large, we were followed by ENT and obviously the dermatology clinic from the beginning. Sam is 3...
Forum: Help and Resources for Hemangiomas 08-08-2010, 01:55 AM
Replies: 10
Views: 11
Posted By Sam's Mom
Hi there - Just wanted to chime in and say that...

Hi there - Just wanted to chime in and say that my son had similar side effects on steroids. The sleeping particularly was a nightmare. Things started to improve as we weaned him and I would say he...
Forum: Help and Resources for Hemangiomas 11-16-2009, 02:41 PM
Replies: 10
Views: 493
Posted By Sam's Mom
Hi there - My son has a beard distribution...

Hi there -

My son has a beard distribution hemangioma which was combined with a large parotid hemangioma. He was on steroids from 7 months to 10 months of age (he is now 2.5 years old). We did...
Forum: Help and Resources for Hemangiomas 10-28-2009, 01:48 PM
Replies: 3
Views: 360
Posted By Sam's Mom
Our experience with steroids was that our son...

Our experience with steroids was that our son didn't become cranky or miserable, nor did his stomach seem to give him any problems. We gave him Zantac as well, and he did fine.

We did experience...
Forum: Help and Resources for Hemangiomas 10-21-2009, 03:13 PM
Replies: 18
Views: 1,046
Posted By Sam's Mom
My son had a couple of similar-looking small...

My son had a couple of similar-looking small hemangiomas on his lip that never really grew beyond the first month or so. He also had a large parotid hemangioma that required treatment, but the lip...
Forum: Help and Resources for Hemangiomas 09-25-2009, 01:17 PM
Replies: 9
Views: 866
Posted By Sam's Mom
We tried flavouring it for my son but if...

We tried flavouring it for my son but if anything, he seemed to hate that worse than the non-flavoured stuff. Our doc was fine with us mixing it and we had started supplementing nursing with bottles...
Forum: Help and Resources for Hemangiomas 09-15-2009, 01:46 PM
Replies: 8
Views: 722
Posted By Sam's Mom
Hi there - I'm pregnant with # 2 and stressing a...

Hi there - I'm pregnant with # 2 and stressing a bit about this as well. While we were in the initial stages of treatment for my son, all the docs (his ped, derm and ENT) kept asking if any family...
Forum: Help and Resources for Hemangiomas 05-14-2009, 01:30 PM
Replies: 3
Views: 744
Posted By Sam's Mom
Hi there! I'm glad to hear things are still...

Hi there! I'm glad to hear things are still going well with the propranolol. Two quick comments:

1) We did wean Sam a lot faster than what you describe. He was on his full dose for about 6 weeks...
Forum: Help and Resources for Hemangiomas 04-01-2009, 04:08 PM
Replies: 10
Views: 1,267
Posted By Sam's Mom
I'm so glad that Propranolol is working for...

I'm so glad that Propranolol is working for Evelyn! Yay!

Let's see - I didn't notice increases in the size or hardness of the hemangioma between his daily doses of steriods - it was a pretty...
Forum: Help and Resources for Hemangiomas 03-30-2009, 12:35 AM
Replies: 1
Views: 787
Posted By Sam's Mom
Hi there - From what I understand, lots of...

Hi there - From what I understand, lots of people have had very good results with Propranolol. However, its use in treatment of hemangiomas is very new. Take a look at this discussion on another...
Forum: Help and Resources for Hemangiomas 03-13-2009, 04:04 PM
Replies: 10
Views: 1,267
Posted By Sam's Mom
Hi there - Thanks - we think he's cute, but...

Hi there -

Thanks - we think he's cute, but we're biased! ;-)

I'm so glad you've come to a treatment decision that you're comfortable with. I remember how difficult it was to make that decision. ...
Forum: Help and Resources for Hemangiomas 03-13-2009, 03:04 PM
Replies: 11
Views: 1,027
Posted By Sam's Mom
Hsc

Hi there -

From what I understand , the wait for a referral to Sick Kids clinics can be quite long.

When our son was about 3 months old, at a check-up our ped told us to take him to Emergency...
Forum: Help and Resources for Hemangiomas 03-02-2009, 07:44 PM
Replies: 10
Views: 1,267
Posted By Sam's Mom
Hi there - Oh, good - the 15 mg thing does make...

Hi there -

Oh, good - the 15 mg thing does make it make a lot more sense!

WRT your last two questions:

I guess it depends on what you mean by 'hard' - before treatment, Sam's was about the...
Forum: Help and Resources for Hemangiomas 03-02-2009, 02:56 PM
Replies: 10
Views: 1,267
Posted By Sam's Mom
Hi there - Is the concentration of the...

Hi there -

Is the concentration of the medication 5 mg per 5 mL? (The bottle will show that information). From what I understand, there are different concentrations of the drug, so she might be...
Forum: Help and Resources for Hemangiomas 02-18-2009, 07:07 PM
Replies: 10
Views: 945
Posted By Sam's Mom
I heard a lot of "What's wrong with his...

I heard a lot of "What's wrong with his face?" I always wanted to reply "Nothing. What's wrong with your manners?" but let's face it - I'm Canadian, I don't have the guts! ;-)

However, I will...
Forum: Help and Resources for Hemangiomas 02-06-2009, 02:37 PM
Replies: 8
Views: 904
Posted By Sam's Mom
My son took steroids from 7 - 10 months of age,...

My son took steroids from 7 - 10 months of age, with a dose of 2 mg/kg, for his parotid hemangioma. The two most difficult aspects were, by far the lack of sleep and the difficulty getting the...
Forum: Help and Resources for Hemangiomas 11-14-2008, 06:15 PM
Replies: 3
Views: 692
Posted By Sam's Mom
Hi there - I don't want to be a troll here, but...

Hi there -

I don't want to be a troll here, but I have to point out that loving your child no matter what isn't related to being "well educated, smart professional people." I know you didn't mean...
Forum: Help and Resources for Hemangiomas 11-13-2008, 03:45 PM
Replies: 1
Views: 891
Posted By Sam's Mom
Hi Tiffany - My son has a very different type...

Hi Tiffany -

My son has a very different type of hemangioma so I'm not sure if our experience applies to your daughter at all, but we did find that his hemangioma had two periods of growth with a...
Forum: Help and Resources for Hemangiomas 07-15-2008, 07:53 PM
Replies: 9
Views: 1,339
Posted By Sam's Mom
Well, here's the update from today's MRI. They...

Well, here's the update from today's MRI. They wouldn't let me stay with Sam after he was asleep but I was happy to see that they used gas to put him to sleep before inserting the IV - I've see him...
Forum: Help and Resources for Hemangiomas 07-14-2008, 04:54 PM
Replies: 9
Views: 1,339
Posted By Sam's Mom
What timing - Sam's having an MRI tomorrow - he's...

What timing - Sam's having an MRI tomorrow - he's fifteen months old. I'll let you know if I have anything to add based on our experience. He's already been sedated once for an ECG but hasn't had...
Forum: Help and Resources for Hemangiomas 05-30-2008, 07:45 PM
Replies: 6
Views: 988
Posted By Sam's Mom
I can tell you a story about successful...

I can tell you a story about successful treatment, although I can't say the side effects were easy to manage.

But first the success - Sam was a bit older (7 months) when he was put on steroids for...
Forum: Help and Resources for Hemangiomas 05-14-2008, 06:36 PM
Replies: 6
Views: 1,602
Posted By Sam's Mom
After Hollis was 3 months old, you saw 2 more...

After Hollis was 3 months old, you saw 2 more hemangiomas appear? Yikes - I thought you would have been out of the woods on new ones by that age. Anyone know how long they can keep showing up for?
Forum: Help and Resources for Hemangiomas 05-14-2008, 06:32 PM
Replies: 21
Views: 2,548
Posted By Sam's Mom
My experience with your question is a bit...

My experience with your question is a bit strange. When we had started seeing the specialists (dermatology, ENT) for my son's hemangioma, every doctor asked us if anyone in the family had had a...
Forum: Twins With Birthmarks 04-14-2008, 05:18 PM
Replies: 8
Views: 4,730
Posted By Sam's Mom
I've just noticed that this is a very old thread....

I've just noticed that this is a very old thread. Whoops!
Forum: Twins With Birthmarks 04-14-2008, 05:15 PM
Replies: 8
Views: 4,730
Posted By Sam's Mom
Hi there - Our son Sam has a parotid hemangioma...

Hi there -

Our son Sam has a parotid hemangioma that we treated with steroids for three months (about 6 weeks at full dose and 6 weeks weaning) starting when he was 7 months old. He's now just over...
Showing results 1 to 25 of 25

 
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