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Search: Posts Made By: Myliitlepuddin
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 04-08-2014, 11:58 AM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Hi, I've not been on here for a while sorry,...

Hi,

I've not been on here for a while sorry, last year my daughter had 4 treatments of bleomycin injections in her lip. The results were fantastic. The swelling of her lip has gone down a lot. She...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 01-24-2013, 12:55 PM
Replies: 2
Views: 3
Posted By Myliitlepuddin
hi my daughter has micro cystic lymphangioma and...

hi my daughter has micro cystic lymphangioma and is currently having injection treatment at the moment. she has just had her 4th one and we are seeing great results. hers is in her upper lip, up to...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 10-28-2012, 06:17 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
http://www.gosh.nhs.uk/EasysiteWeb/getresource.axd...

http://www.gosh.nhs.uk/EasysiteWeb/getresource.axd?AssetID=121619&type=full&servicetype=Attachment

thought some of you may find this useful from the london gosh hospital, regarding schlerotherapy
Forum: General Resources 10-28-2012, 06:15 PM
Replies: 17
Views: 18
Posted By Myliitlepuddin
http://www.gosh.nhs.uk/EasysiteWeb/getresource.axd...

http://www.gosh.nhs.uk/EasysiteWeb/getresource.axd?AssetID=121619&type=full&servicetype=Attachment


thought some of you might find this link useful
Forum: General Resources 10-17-2012, 06:08 PM
Replies: 17
Views: 18
Posted By Myliitlepuddin
Smile bleomycin treatment

hi everyone,

I've not posted here for a while, so thought I would give you all an update on how my daughter is. She has started her bleomycin injections, she has had her first round and she was...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 08-15-2012, 10:14 AM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Hi, yes she is good thanks and we now have a date...

Hi, yes she is good thanks and we now have a date for her to start her treatment.
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 05-05-2012, 10:02 AM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Hi ayalara, thankyou for sharing your picture,...

Hi ayalara, thankyou for sharing your picture, where do you live x
Forum: Port Wine Stain Help and Resources 05-05-2012, 09:08 AM
Replies: 6
Views: 7
Posted By Myliitlepuddin
Inspiring story for any adult or child suffering...

Inspiring story for any adult or child suffering with a Birthmark. As a parent I agonise over making the right decisions for my daughter who has microcystic lymphangioma. I can not decide on whether...
Forum: Port Wine Stain Help and Resources 03-28-2012, 07:10 AM
Replies: 12
Views: 13
Posted By Myliitlepuddin
Smile Thanks for sharing your story, it just shows that...

Thanks for sharing your story, it just shows that you should never give up. I dont know much about pws but i can definatly see the difference its made.

Good luck with your future treatments :-)
Forum: General Resources 03-19-2012, 01:48 PM
Replies: 17
Views: 18
Posted By Myliitlepuddin
No nothing yet. We have been told surgery would...

No nothing yet. We have been told surgery would just be a debulking procedure and would only have temporary results as it cant be completely removed and would quickly grow back. Probably resulting in...
Forum: General Resources 03-19-2012, 10:55 AM
Replies: 17
Views: 18
Posted By Myliitlepuddin
Bleomycin treatment.

We havent got our appointment through yet because of holidays etc. But we should be starting the treatment end of april - beginning of may. I will let you all know how it goes.
Forum: General Resources 03-01-2012, 10:27 PM
Replies: 17
Views: 18
Posted By Myliitlepuddin
Bleomycin injections

http://www.southtees.nhs.uk/live/?a=3361

Hi,

I have heard of this treatment it is being done in the uk at the moment. My daughter is hopefully having this soon. I will keep you all updated with how...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-01-2012, 10:14 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Thank you for your reply, we have recently been...

Thank you for your reply, we have recently been refered to a new hospital and are going to try bleomycin injections which looks really promising.

I hope your daughters surgery goes well.
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-01-2012, 10:11 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Hi, Sorry ive just seen your reply. We have...

Hi,
Sorry ive just seen your reply. We have recently been refered to south tees hospital and will be trying bleomycin injections. Which from what i have been told is very effective and ive done a bit...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-17-2011, 10:18 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Appologies for my really bad spelling, predictive...

Appologies for my really bad spelling, predictive text gone mad
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-17-2011, 10:17 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
I habe done quite a bit if research online on...

I habe done quite a bit if research online on svlerothopy for her and habe asked our doctor if this is a possibility but they did an mri and ultrasound scan and have said the cists are too mictocopic...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-17-2011, 10:11 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Question Thankyou

Hi,

Thankyou all for your reply's, we live in the uk so doctors here are few and far between that deal with lymphangioma. We have seen a specialist here who has suggested lazer treatment, which...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-19-2011, 10:11 PM
Replies: 22
Views: 23
Posted By Myliitlepuddin
Micro cystic lymphangioma of the upper lip

Hi,

My daughter who is nearly 3 years old has a micro cystic lymphangioma of her upper lip. This is something she has had since birth, we have seen doctors at both Manchester childrens hospital and...
Showing results 1 to 18 of 18

 
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