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Search: Posts Made By: lizzyh
Forum: Help and Resources for Hemangiomas 11-09-2011, 09:10 PM
Replies: 6
Views: 7
Posted By lizzyh
My daughter had laser treatment for her ulcerated...

My daughter had laser treatment for her ulcerated hemangioma on her left butt cheek in 2009. She received 4 or 5 treatments every two weeks. It kept the wound clean and allowed it to heal faster. ...
Forum: Help and Resources for Hemangiomas 04-28-2011, 10:11 PM
Replies: 6
Views: 7
Posted By lizzyh
So happy to hear your daughter is doing well! We...

So happy to hear your daughter is doing well! We took our daughter to Childrens Hospital in Denver also several times last year. We saw Dr. Morelli and really liked the nurses and dr's there. We...
Forum: Help and Resources for Hemangiomas 03-03-2011, 08:51 PM
Replies: 10
Views: 11
Posted By lizzyh
My older daughter has a very small angioma (red...

My older daughter has a very small angioma (red bump) on her upper lip, but nothing that ever required intervention. My 1 year old has a hemangioma on her bottom that ulcerated. I must say that I...
Forum: Help and Resources for Hemangiomas 03-03-2011, 08:49 PM
Replies: 5
Views: 6
Posted By lizzyh
So cute! I don't have much advice besides to say...

So cute! I don't have much advice besides to say to trust your own instinct. You can put trust in the dr's but you are her mama and have to be her advocate. Good luck! Just ask lots more...
Forum: CMTC 01-26-2011, 09:20 PM
Replies: 4
Views: 5
Posted By lizzyh
Ask your nurse about mepilex-a wound cover. It...

Ask your nurse about mepilex-a wound cover. It is a waterproof, breathable bandage that works in the diaper area. It worked on my daughter's ulcer on her butt cheek.
Forum: Twins With Birthmarks 01-26-2011, 09:17 PM
Replies: 12
Views: 6,447
Posted By lizzyh
I am so sorry for your loss! My daughter has a...

I am so sorry for your loss! My daughter has a hemangioma on her left butt cheek. It has been a year since it ulcerated and was a deep, open wound for almost three months (Feb-Apr 2010). We took...
Forum: Help and Resources for Hemangiomas 09-17-2010, 03:46 PM
Replies: 11
Views: 12
Posted By lizzyh
I had the H1N1 and regular flu shots while 8...

I had the H1N1 and regular flu shots while 8 months pregnant. My daughter has a hemangioma that ulcerated on her bottom. I also have wondered about a possible correlation.
Forum: Help and Resources for Hemangiomas 08-09-2010, 09:31 PM
Replies: 11
Views: 12
Posted By lizzyh
Are you in Northern New Mexico? Is Denver really...

Are you in Northern New Mexico? Is Denver really far? We traveled to Denver from Wyoming about 4 1/2 hours to see Dr. Morelli at the Childrens Hospital. It is so hard when no one local can help! ...
Forum: Help and Resources for Hemangiomas 08-05-2010, 03:58 PM
Replies: 11
Views: 12
Posted By lizzyh
It is definitely good to be proactive and watch...

It is definitely good to be proactive and watch the H closely. Especially in the diaper area. Try not to touch the or wipe the hemangioma a lot. I know that is hard in that area. I'm not sure how...
Forum: Help and Resources for Hemangiomas 07-02-2010, 08:49 PM
Replies: 2
Views: 3
Posted By lizzyh
hemangioma update

Hi everyone...I'm attaching an updated photo of my 8 month old daughter's hemangioma on her left butt cheek. The color variation is amazing! You can really see the scar tissue and feel how firm it...
Forum: Help and Resources for Hemangiomas 06-18-2010, 09:03 PM
Replies: 6
Views: 7
Posted By lizzyh
I'm so sorry your baby is in pain! My daughter...

I'm so sorry your baby is in pain! My daughter Geneva (we call her Eva also) is 7 months old. She has a hemangioma on her left butt cheek that ulcerated for 3 months. She had laser therapy on the...
Forum: Help and Resources for Hemangiomas 05-28-2010, 03:41 PM
Replies: 6
Views: 7
Posted By lizzyh
My daughter's was present at birth and has stayed...

My daughter's was present at birth and has stayed pretty much the same size in the 7 months since she was born.
Forum: Help and Resources for Hemangiomas 05-25-2010, 09:32 PM
Replies: 10
Views: 11
Posted By lizzyh
Are any of you afraid to touch the H if it...

Are any of you afraid to touch the H if it ulcerated previously? I am scared to death my daughter's is going to ulcerate again so I've been keeping it covered about half the time and touching it...
Forum: Help and Resources for Hemangiomas 05-25-2010, 09:29 PM
Replies: 3
Views: 4
Posted By lizzyh
Thank you for the response! How is she doing...

Thank you for the response! How is she doing now? I think I'm going to set up an appointment with the pediatric dermatologist at Denver Children's Hospital who lasered her ulcer. It probably won't...
Forum: Help and Resources for Hemangiomas 05-24-2010, 04:34 PM
Replies: 3
Views: 4
Posted By lizzyh
cold feet/possible CMTC?

My daughter has a flat, purple, hemangioma on her buttcheek. It was cavernous, ulcerated for about 3 months. She also has very cold feet since she was born. My mom says when she was born she was...
Forum: Help and Resources for Hemangiomas 05-18-2010, 04:24 PM
Replies: 11
Views: 1,072
Posted By lizzyh
I feel your pain!! Maybe try mepilex borders...

I feel your pain!! Maybe try mepilex borders (see response to Kirstyloo). Would laser treatment of the ulceration be an option?
Forum: Help and Resources for Hemangiomas 05-18-2010, 04:22 PM
Replies: 9
Views: 10
Posted By lizzyh
Kirstyloo, reading your original post made me...

Kirstyloo, reading your original post made me want to cry. I know what you're going through and how hard it is to see your baby in pain. My daughter has a hemangioma on her left buttcheek that...
Forum: Help and Resources for Hemangiomas 04-25-2010, 04:01 PM
Replies: 2
Views: 3
Posted By lizzyh
Smile ulcerated hemangioma update

My daughter's ulcer on her hemangioma on her bottom has finally healed! Start to finish the ulcer was present for 3 months. She received 4 laser treatments and we did wound care of vaseline, wound...
Forum: Help and Resources for Hemangiomas 03-25-2010, 03:53 PM
Replies: 3
Views: 4
Posted By lizzyh
Question mist therapy/oxygen to heal ulcers?

I was wondering what experience anyone has with Mist Therapy (Celleration) or hyperbaric oxygen units to heal ulcers? I've been researching wound care and found that both are used in adults to heal...
Forum: Help and Resources for Hemangiomas 03-23-2010, 02:39 PM
Replies: 15
Views: 16
Posted By lizzyh
Prayers for your baby and healing...also prayers...

Prayers for your baby and healing...also prayers of strength for you!! Have you had success with lidocaine? I've been afraid to use it. How much to you use and how often? Also, have you tried...
Forum: Help and Resources for Hemangiomas 03-23-2010, 02:35 PM
Replies: 9
Views: 10
Posted By lizzyh
I'm not sure if surgery is an option on a diaper...

I'm not sure if surgery is an option on a diaper area hemangioma. I'll ask our doc on Monday. I think the drug is regrenex. Does anyone have experience with that? I asked about it a few weeks...
Forum: Help and Resources for Hemangiomas 03-22-2010, 03:31 PM
Replies: 15
Views: 16
Posted By lizzyh
I'm so sorry for your baby's ulcer! They are so...

I'm so sorry for your baby's ulcer! They are so painful and it is horrible not to be able to help your baby. From what I've read treating ulcers is trial and error. Have you looked into laser on...
Forum: Help and Resources for Hemangiomas 03-22-2010, 03:27 PM
Replies: 5
Views: 6
Posted By lizzyh
My daughter is 4.5 months old now. The pediatric...

My daughter is 4.5 months old now. The pediatric dermatologist has been using the pulsed dye laser on her ulceration. I wish we could have stuck with wait and see, but unfortunately her H...
Forum: Help and Resources for Hemangiomas 03-19-2010, 04:00 PM
Replies: 5
Views: 6
Posted By lizzyh
My daughter's hemangioma on her bottom is flat...

My daughter's hemangioma on her bottom is flat and has been since birth. I think we had a false sense of security...the pediatrician said not to worry about it. It has ulcerated rapidly. The Dr....
Forum: Help and Resources for Hemangiomas 03-15-2010, 03:23 PM
Replies: 3
Views: 4
Posted By lizzyh
My 4 month old has an ulcerated hemangioma on her...

My 4 month old has an ulcerated hemangioma on her bottom...but my older child has a red bump on her lip. It is kind of a funny coincidence. Her red bump looks the exact same as the one on your...
Showing results 1 to 25 of 44

 
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