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1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
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Search: Posts Made By: Smurfy
Forum: Living with a birthmark - my story 11-12-2010, 06:44 AM
Replies: 3
Views: 4
Posted By Smurfy
Talking Yeah day by day is all we can do. 32 years...

Yeah day by day is all we can do. 32 years dealing with this, its been an adventure to say the least.
Forum: Living with a birthmark - my story 11-10-2010, 08:31 AM
Replies: 3
Views: 4
Posted By Smurfy
My life with my PWS

Born in '78 I've had a large PWS covering about half my face,neck, and upper chest. Covers the left side of my face just below the eye down across my mouth, and down to my chest, also covering my...
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