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Search: Posts Made By: kaykay
Forum: Help and Resources for Hemangiomas 09-22-2012, 04:12 PM
Replies: 0
Views: 1
Posted By kaykay
Trinidad Toddler...

i had hoped this kid would of had help by now. she needs over half a mill in TT dollars for her surgerys and i remember this case was blanked by the children's life fund which kids are entitled to...
Forum: Port Wine Stain Help and Resources 08-09-2012, 01:24 AM
Replies: 2
Views: 3
Posted By kaykay
i registered ages ago. I really want to return...

i registered ages ago. I really want to return with my mom this year to hear the doctors and so on. understand things better.

but i am not sure now. hoping for some good news from South Carolina....
Forum: Port Wine Stain Help and Resources 07-27-2012, 01:47 AM
Replies: 13
Views: 14
Posted By kaykay
your english is fine :)

your english is fine :)
Forum: Adults Living with Birthmarks 07-27-2012, 01:46 AM
Replies: 5
Views: 6
Posted By kaykay
tried different painkillers and muscle relaxers,...

tried different painkillers and muscle relaxers, none worked.

my doctor had one theory. It usually happened after physical activity, particular strain to the neck. my MRIs are really weird and show...
Forum: Adults Living with Birthmarks 07-21-2012, 09:38 PM
Replies: 5
Views: 6
Posted By kaykay
i would have to say i have the almost exact...

i would have to say i have the almost exact problem with my neck, chest, ear and face.

fever
chills
swelling
PAINNNNNNNNNNN
bed stricken
did i mention PAINNNNNNNNN ?
do you have any lymph like...
Forum: Port Wine Stain Help and Resources 07-21-2012, 09:27 PM
Replies: 3
Views: 4
Posted By kaykay
ok i was wrong an looked at the picture first and...

ok i was wrong an looked at the picture first and went HUH ? lol

honestly, your own pic might of help with persons answering but is ok.

I don't think i've heard anyone mention problems with hair...
Forum: Port Wine Stain Help and Resources 07-21-2012, 09:22 PM
Replies: 2
Views: 3
Posted By kaykay
pity. i don't live in NY. would definitely sign...

pity. i don't live in NY. would definitely sign up otherwise
Forum: Port Wine Stain Help and Resources 07-21-2012, 09:20 PM
Replies: 8
Views: 9
Posted By kaykay
this is your first disappointment and most likely...

this is your first disappointment and most likely it won't be your last but i hope it is.

first take a breath.

there will be more options. from what i have observes, PWS may be slow at that age so...
Forum: Port Wine Stain Help and Resources 07-04-2012, 02:07 AM
Replies: 1
Views: 2
Posted By kaykay
ok i thought this was SPAM. lol i sent this link...

ok i thought this was SPAM. lol

i sent this link to a friend on facebook who lives in the UK
Forum: Port Wine Stain Help and Resources 07-04-2012, 02:06 AM
Replies: 7
Views: 8
Posted By kaykay
aww cute footsys

aww cute footsys
Forum: Port Wine Stain Help and Resources 07-04-2012, 02:04 AM
Replies: 3
Views: 4
Posted By kaykay
your welcome. others will post also with their...

your welcome. others will post also with their advice.

Soccer is great. Its about team building, communication etc...my PWS was too severe so i never really played sports incase of injury. I never...
Forum: Port Wine Stain Help and Resources 07-01-2012, 04:11 AM
Replies: 3
Views: 4
Posted By kaykay
First, its fantastic you have the communication...

First, its fantastic you have the communication with her. I think thats really really positive. I hope that continues.

I have a facial PWS.

KIDS ARE HELL.

whats happening to her i think is...
Forum: Adults Living with Birthmarks 07-01-2012, 03:48 AM
Replies: 6
Views: 7
Posted By kaykay
congrats to both of you on getting married !...

congrats to both of you on getting married !

i've still not see any difference or dramatic changes while i'm been on the pill. on Yaz almost 2 years and the only thing is that i may had gain a...
Forum: Port Wine Stain Help and Resources 06-10-2012, 03:57 PM
Replies: 0
Views: 1
Posted By kaykay
For parents...

i came across these links while looking for justice league episode. I thought it might be of help for some...
Forum: Port Wine Stain Help and Resources 06-10-2012, 04:24 AM
Replies: 3
Views: 4
Posted By kaykay
I don't think you have anything to worry about...

I don't think you have anything to worry about Marie. you look fine to me. there is nothing you can do about people but choose how you respond to it
Forum: Port Wine Stain Help and Resources 06-10-2012, 04:20 AM
Replies: 9
Views: 10
Posted By kaykay
third hand, kinda. will be returning to the VBF...

third hand, kinda. will be returning to the VBF conference this year to find out whats the hold up or do i have to try another doctor. its not something i want to discuss on a public forum but i have...
Forum: Port Wine Stain Help and Resources 06-09-2012, 01:34 AM
Replies: 9
Views: 10
Posted By kaykay
does anyone have an idea what the cost would be...

does anyone have an idea what the cost would be to remove a PWS like mine? just an estimate
Forum: Port Wine Stain Help and Resources 06-09-2012, 01:32 AM
Replies: 4
Views: 5
Posted By kaykay
when i attended the VBF conference in 2010 i...

when i attended the VBF conference in 2010 i think my roommate tried it. her PWS on her hand looked like a very light rash, best i can discribe, hardly noticable. It does cover the PWS but it...
Forum: Port Wine Stain Help and Resources 05-06-2012, 12:53 AM
Replies: 9
Views: 10
Posted By kaykay
thank you :)

thank you :)
Forum: Port Wine Stain Help and Resources 05-06-2012, 12:49 AM
Replies: 6
Views: 7
Posted By kaykay
thanks for sharing your story Joe. It might be...

thanks for sharing your story Joe. It might be hard for parents to hear sometimes but yes, it is still up to use to work out our PWS issues on our own.



To myliitlepuddin, my view is if it is a...
Forum: Port Wine Stain Help and Resources 03-29-2012, 12:26 AM
Replies: 9
Views: 10
Posted By kaykay
um..thanks. there's a few things currently in...

um..thanks.

there's a few things currently in progress :) but right now i gotta gather courage to see my doc about a spot on my nose (scar that won't heal but mom kind freakin out it could be skin...
Forum: Port Wine Stain Help and Resources 03-29-2012, 12:13 AM
Replies: 12
Views: 13
Posted By kaykay
thanks for posting pics of your progress and good...

thanks for posting pics of your progress and good luck with the treatments
Forum: Port Wine Stain Help and Resources 03-25-2012, 12:41 AM
Replies: 9
Views: 10
Posted By kaykay
my pic

so every year now i try to do something to calm personal demons. this year, i'm gonna not be so afraid to have my pic online. I posted this pic on birthmarks.com facebook. thought i would suck it up...
Forum: Port Wine Stain Help and Resources 03-24-2012, 07:38 PM
Replies: 9
Views: 10
Posted By kaykay
i have zero knowledge of pws but what i can tell...

i have zero knowledge of pws but what i can tell you is that you have a happy looking baby who has no clue about the pws and she doesn't have to worry about what the other kids say cause as far she...
Forum: Adults Living with Birthmarks 03-24-2012, 07:35 PM
Replies: 6
Views: 7
Posted By kaykay
i've been on Yaz over a year now with zero...

i've been on Yaz over a year now with zero problems. if anything, i don't know for sure, but my pws has not swelled up for almost a year, no fevers etc...growth of the pws has not accelerated as far...
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