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Search: Posts Made By: Rachel06
Forum: Help and Resources for Hemangiomas 05-10-2009, 11:35 PM
Replies: 1
Views: 614
Posted By Rachel06
The second part of the three-part series is on...

The second part of the three-part series is on tonight. 9 p.m. CST. Hope you can watch.
thanks.
Sherri
Forum: Help and Resources for Hemangiomas 05-04-2009, 01:28 AM
Replies: 1
Views: 614
Posted By Rachel06
MSNBC series with Dr. Waner tonight

Hi, everyone - just passing along that a three part series will run starting tonight at 9 p.m. CST on MSNBC. "Change of Face" featuring Dr. Waner and two other doctors. It is set to run for one...
Forum: Help and Resources for Hemangiomas 12-02-2008, 02:19 AM
Replies: 6
Views: 1,240
Posted By Rachel06
Hi, Judy. First off, I wanted to say, she is so...

Hi, Judy. First off, I wanted to say, she is so cute!!! Wish we all had that bright-eyed look... Second, I just wanted to offer out support. From your post, it seems like you have been searching...
Forum: Help and Resources for Hemangiomas 09-24-2008, 03:31 AM
Replies: 4
Views: 1,018
Posted By Rachel06
Hi, Tiffany. How is your little one? I am a...

Hi, Tiffany. How is your little one? I am a hemangioma mom, and went through quite a bit with my daughter. I would recommend a vascular anomaly specialist and then have them send you to an opth....
Forum: Help and Resources for Hemangiomas 09-09-2008, 03:50 AM
Replies: 3
Views: 899
Posted By Rachel06
Hey there - my daughter, Rachel went through 10...

Hey there - my daughter, Rachel went through 10 procedures with Dr. Waner in New York. I was always scared - I am her mother, that is part of my job. But I can tell you that you are in the very...
Forum: Help and Resources for Hemangiomas 08-21-2008, 04:16 AM
Replies: 6
Views: 1,253
Posted By Rachel06
Hi and welcome to the group. My daughter,...

Hi and welcome to the group. My daughter, Rachel, went through 10 laser surgeries with Dr. Waner in New York. There is a ton of info out there, and all confusing depending on who you talk to. We...
Forum: Help and Resources for Hemangiomas 07-16-2008, 03:17 AM
Replies: 9
Views: 1,339
Posted By Rachel06
Rachel was under for an MRI when she was only 2...

Rachel was under for an MRI when she was only 2 wks old. She did just fine - we were terrified, of course. Then from there, she was a regular - GA four times and then gas another 6 times with her...
Forum: Help and Resources for Hemangiomas 07-08-2008, 03:59 AM
Replies: 8
Views: 1,924
Posted By Rachel06
Jessica - I am so happy for you! I just looked...

Jessica - I am so happy for you! I just looked at her photos - so great to see wonderful EVA without her h!!! Congrats.
Sherri
Forum: Help and Resources for Hemangiomas 06-29-2008, 04:26 PM
Replies: 5
Views: 1,337
Posted By Rachel06
We went through 10 procedures for Rachel - who is...

We went through 10 procedures for Rachel - who is about to turn three. And, I can say, I don't regret a thing. She looks amazing and it truly did give her an opportunity to look "normal." Where if...
Forum: Help and Resources for Hemangiomas 06-29-2008, 04:22 PM
Replies: 9
Views: 1,980
Posted By Rachel06
Mommy of 2 in KY - I had a wonderful experience...

Mommy of 2 in KY - I had a wonderful experience with Dr. Waner in NYC. e-mail me privately if you like - I am sure there are options out there for you. He treated my daughter (who is now 3) with...
Forum: Help and Resources for Hemangiomas 06-29-2008, 04:17 PM
Replies: 14
Views: 2,959
Posted By Rachel06
Hi there, and first off, I want to say, your...

Hi there, and first off, I want to say, your little girls is simply beautiful - those eyes, and lashes... wow!!! My daughter, Rachel had some aggressive segmental hemangiomas. I would love the...
Forum: Help and Resources for Hemangiomas 06-21-2008, 02:59 PM
Replies: 8
Views: 1,416
Posted By Rachel06
I would really love to talk to you. BCBS is one...

I would really love to talk to you. BCBS is one of the hardest - but I did notice you said that they anesth is out of network. That is curious to me because your hospital is in-network. There is...
Forum: Help and Resources for Hemangiomas 06-21-2008, 02:48 PM
Replies: 0
Views: 835
Posted By Rachel06
NY Times Article - Dr. Waner

Another tear-jerker. Enjoy.

http://www.nytimes.com/2008/06/15/nyregion/nyregionspecial2/15colct.html?ex=1214193600&en=ac5988e0db4340a4&ei=5070&emc=eta1

Sherri
Forum: Help and Resources for Hemangiomas 05-31-2008, 01:07 PM
Replies: 5
Views: 1,035
Posted By Rachel06
We tried topical cream for just a few wks. But,...

We tried topical cream for just a few wks. But, with no results and some advice from other doctors, we ceased to apply. I am more than happy to share if you want. Keep us posted on how things are...
Forum: Help and Resources for Hemangiomas 05-31-2008, 01:03 PM
Replies: 6
Views: 988
Posted By Rachel06
oral steroids

Hi, my daughter, Rachel was on steroids - a significant dose - from 4 wks until 11 months - including the wean. She did end up with the "chubby" appearance or moon-face is what some refer to it as. ...
Forum: Help and Resources for Hemangiomas 05-27-2008, 02:20 AM
Replies: 2
Views: 905
Posted By Rachel06
Good Morning America Story on Dr. Waner/cheek H

The story got bumped - I am checking and will post the date it will run (it may run tomorrow - but we could not get through to find out for sure). I will post when I get more info.

Thanks!
Sherri
Forum: Help and Resources for Hemangiomas 05-25-2008, 11:29 PM
Replies: 2
Views: 905
Posted By Rachel06
Dr. Waner to be on Good Morning America tomorrow...

For those of you who are interested, Dr. Waner will be on Good Morning America tomorrow sometime between 7 a.m. and 9 a.m. EST. There is a story of a cheek hemangioma and it is always nice to see...
Forum: Help and Resources for Hemangiomas 05-16-2008, 02:39 AM
Replies: 21
Views: 2,548
Posted By Rachel06
This is a very common question - one we asked...

This is a very common question - one we asked too. Now, after some years of involvement, here is what I have been told. That it is NOT hereditary, but it occurs in 10% if caucasian babies - that is...
Forum: Help and Resources for Hemangiomas 05-02-2008, 11:15 PM
Replies: 7
Views: 1,105
Posted By Rachel06
I also went through quite a bit to get out to NY....

I also went through quite a bit to get out to NY. And, every doctor she went to - did not want aggressive treatment. We also had an eyelid excision - a bit different placement, but I would be happy...
Forum: Help and Resources for Hemangiomas 04-24-2008, 11:41 PM
Replies: 4
Views: 1,248
Posted By Rachel06
Karis - I am so sorry you are struggling. I am...

Karis - I am so sorry you are struggling. I am offering up support to you. If you want, I am also happy to help you in any way I can to get treatment for your daughter. This is a very scary time. ...
Forum: Help and Resources for Hemangiomas 04-19-2008, 08:04 PM
Replies: 8
Views: 1,188
Posted By Rachel06
Hi Yazmin. My daughter was treated in NY. I...

Hi Yazmin. My daughter was treated in NY. I know you can actually contact Sonya, his billing coordinator - and find out - based on your insurance what type of expense you are looking at so you can...
Forum: Help and Resources for Hemangiomas 04-11-2008, 11:48 PM
Replies: 5
Views: 1,142
Posted By Rachel06
Hi, my daughter Rachel had a nasal tip hemangioma...

Hi, my daughter Rachel had a nasal tip hemangioma - both superficial and compound. I would be more than happy to share all her progressive photos with you and share our story. I am available at...
Forum: Help and Resources for Hemangiomas 04-11-2008, 11:44 PM
Replies: 4
Views: 954
Posted By Rachel06
My daughter had several laser treatments - but...

My daughter had several laser treatments - but her segmental hemangioma was quite large and very aggressive. We ended up with a total of 10 - but I must say it was about the 5th treatment where we...
Forum: Help and Resources for Hemangiomas 04-04-2008, 09:28 PM
Replies: 8
Views: 1,184
Posted By Rachel06
Try my cell 917-703-1903. We can go from...

Try my cell 917-703-1903. We can go from there.
sherri
Forum: Help and Resources for Hemangiomas 04-04-2008, 09:26 PM
Replies: 8
Views: 1,378
Posted By Rachel06
Hi Mel. I wish you well on your search for...

Hi Mel. I wish you well on your search for treatment. I am happy to help in any way I can. Feel free to e-mail me privately sherrirfoster@sbcglobal.net.

Hope to hear from you.
Sherri
Showing results 1 to 25 of 38

 
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