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1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
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Search: Posts Made By: carol22
Forum: Living with a birthmark - my story 07-21-2010, 06:26 PM
Replies: 6
Views: 3,528
Posted By carol22
Here is my story, I thought I was born with my...

Here is my story,
I thought I was born with my PWS, now reading this could it have grown so large over the years. My PWS is all on one arm, most of my face,chest, and back. It was very painful to...
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