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Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas Today, 12:27 AM
Replies: 6
Views: 7
Posted By smurph
Thanks for sharing your experiences with...

Thanks for sharing your experiences with propanolol. I am sure the doctors must be looking at the results of the treatments as time moves on to see what it most effective. I think it is important to...
Forum: Help and Resources for Hemangiomas Today, 12:23 AM
Replies: 1
Views: 2
Posted By smurph
Thank you so much for sharing! I too love the...

Thank you so much for sharing! I too love the fact that I kept a photo journal of my daughter's hemangioma. I feel like it really helped me process things, keep a record of what was going on and it...
Forum: Help and Resources for Hemangiomas 04-14-2014, 04:18 AM
Replies: 6
Views: 7
Posted By smurph
Hi there! I'm not sure if this will help or not...

Hi there! I'm not sure if this will help or not because my daughter did not take either of those medications (they weren't really used at the time of her treatment 9 years ago). At that time they...
Forum: Help and Resources for Hemangiomas 04-12-2014, 02:17 AM
Replies: 18
Views: 19
Posted By smurph
Hi there! Every hemangioma is different so it is...

Hi there! Every hemangioma is different so it is hard to say. My daughter's upper lip hemangioma definitely started fading at around a year but was still definitely noticeable at age 3. She had...
Forum: Help and Resources for Hemangiomas 03-27-2014, 02:24 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! There a couple types of of congenital...

Hi there! There a couple types of of congenital hemangioms, so it would depend on what type you were dealing with. There's RICH (rapidly involuting congenital hemangioma) and NICH (noninvoluting). I...
Forum: Help and Resources for Hemangiomas 03-18-2014, 01:45 AM
Replies: 1
Views: 2
Posted By smurph
HI there! If you look on the link: Find a Doctor...

HI there! If you look on the link: Find a Doctor you can look up the names of some doctors in your area, but I know they are probably far for you. You might also email one of the Experts here (like...
Forum: Help and Resources for Hemangiomas 02-25-2014, 02:19 AM
Replies: 3
Views: 4
Posted By smurph
I forgot to mention that I noticed some redness...

I forgot to mention that I noticed some redness on my daughter's gums recently that I hadn't remembered being there before. I sent an email (and photo)to her doctor in Boston and also to Dr....
Forum: Help and Resources for Hemangiomas 02-25-2014, 02:15 AM
Replies: 3
Views: 4
Posted By smurph
Hi there! First of all, I will say that I am not...

Hi there! First of all, I will say that I am not an expert in this at all. All I can share is my own experience and thoughts. I read through a little bit of your blog to get some more background...
Forum: Help and Resources for Hemangiomas 02-20-2014, 04:03 AM
Replies: 4
Views: 5
Posted By smurph
Hi Sarah, I was thinking that it might be...

Hi Sarah,
I was thinking that it might be helpful to email Dr. Aaron Fay (go to Ask the Experts) since he specializes in hemangiomas related to the eye. You should also email a photo. Perhaps he...
Forum: Help and Resources for Hemangiomas 02-14-2014, 04:00 AM
Replies: 11
Views: 12
Posted By smurph
Hi there! I agree with Missy. I know that every...

Hi there! I agree with Missy. I know that every hemangioma is different, but 3 out of my 4 children have them and all of them grew pretty steadily once they appeared getting redder and redder each...
Forum: Help and Resources for Hemangiomas 01-27-2014, 04:01 AM
Replies: 4
Views: 5
Posted By smurph
Thanks! He emailed me back already. :)

Thanks! He emailed me back already. :)
Forum: Help and Resources for Hemangiomas 01-21-2014, 09:20 PM
Replies: 4
Views: 5
Posted By smurph
question for Missy

Hi Missy,
I tried to send a message to Dr. Levitin with a question I have about Faith and when I attached the picture I got this message:

The uploaded file was unable to be saved. The destination...
Forum: Help and Resources for Hemangiomas 01-20-2014, 03:36 AM
Replies: 22
Views: 1,452
Posted By smurph
Hi there! I would suggest you email Dr. Robert...

Hi there!
I would suggest you email Dr. Robert Rosen. You can go to the "Ask the Expert" page here on this website. Perhaps you can send a photo too. He is an expert in the field of vascular lesions...
Forum: Help and Resources for Hemangiomas 01-09-2014, 01:07 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! Is there any way that you could get a...

Hi there!
Is there any way that you could get a second opinion? I see that you went to Texas Childrens Hospital and I think there is a Dr. Lisa M. Buckmiller, MD who works in San Antonio. She was...
Forum: Help and Resources for Hemangiomas 01-07-2014, 09:07 PM
Replies: 12
Views: 13
Posted By smurph
I am so happy to hear that things are going...

I am so happy to hear that things are going better! Great news. Also thank you for sharing your suggestions-I'm sure they will be helpful to others who are in the same situation. Keep in...
Forum: Help and Resources for Hemangiomas 12-14-2013, 03:23 AM
Replies: 12
Views: 13
Posted By smurph
You're welcome :) Like I said, I have been there...

You're welcome :) Like I said, I have been there and it makes me happy to help others. Thanks for the update! I just wanted to get back to you about the wound care expert. You can email Dr. Serena...
Forum: Help and Resources for Hemangiomas 12-11-2013, 12:42 AM
Replies: 12
Views: 13
Posted By smurph
Have you tried products with zinc oxide? That...

Have you tried products with zinc oxide? That might be helpful. What has the doctor recommended (the one who has been doing the laser?

Shannon
Forum: Help and Resources for Hemangiomas 12-03-2013, 08:43 PM
Replies: 12
Views: 13
Posted By smurph
This forum was a lifesaver when we were going...

This forum was a lifesaver when we were going through it ourselves. 3 out of my 4 daughters have hemangiomas. One had medication, surgery and laser. The others resolved on their own. It was a...
Forum: Help and Resources for Hemangiomas 12-03-2013, 01:31 AM
Replies: 12
Views: 13
Posted By smurph
Oh the poor baby! I am so sorry she is going...

Oh the poor baby! I am so sorry she is going through this. It must be so difficult. I would suggest sending a message to Dr. Levitin (go to Ask the Expert panel) to see if he might have any...
Forum: Help and Resources for Hemangiomas 11-29-2013, 11:42 PM
Replies: 5
Views: 6
Posted By smurph
Hi there! So glad you were able to get some...

Hi there! So glad you were able to get some treatment that you have been satisfied with! That must have been a frustrating experience! It sounds to me like the rash is probably more related to the...
Forum: Help and Resources for Hemangiomas 11-22-2013, 12:50 AM
Replies: 20
Views: 21
Posted By smurph
Thanks for posting! Looks great! Shannon

Thanks for posting! Looks great!
Shannon
Forum: Help and Resources for Hemangiomas 11-11-2013, 02:03 AM
Replies: 2
Views: 3
Posted By smurph
I was browsing back through old posts about nasal...

I was browsing back through old posts about nasal tip hemangiomas and didn't know if this thread would be helpful to you:
http://birthmark.org/board/showthread.php?t=3666

So I thought I'd just pass...
Forum: Help and Resources for Hemangiomas 10-24-2013, 01:13 AM
Replies: 8
Views: 9
Posted By smurph
maybe this will help?

I was browsing back through old posts about nasal tip hemangiomas and didn't know if this thread would be helpful to you:
http://birthmark.org/board/showthread.php?t=3666

So I thought I'd just pass...
Forum: Help and Resources for Hemangiomas 10-21-2013, 08:11 PM
Replies: 20
Views: 21
Posted By smurph
Ok, send an email to Corinne if you think you...

Ok, send an email to Corinne if you think you want to go to India to make sure they set aside a space for you. Good luck!
Shannon
Forum: Help and Resources for Hemangiomas 10-16-2013, 01:43 AM
Replies: 8
Views: 9
Posted By smurph
Hi there! If you go to the Find a Doctor section...

Hi there! If you go to the Find a Doctor section on this website and click on the US and then Florida, you will find a list of names of doctors in your area. There is one listed in Tampa actually as...
Showing results 1 to 25 of 378

 
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