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Posts Made By:
abatie
Forum:
Port Wine Stain Help and Resources
02-22-2013, 09:31 PM
Replies:
7
Port Wine + Pigmentation Loss
Views:
8
Posted By
abatie
Do you think a tatoo is a good idea when you...
Do you think a tatoo is a good idea when you aren't exactly sure of the diagnosis. Also, I would be concerned until you get information on the circulation. My daughter has circulation issue on her...
Forum:
Port Wine Stain Help and Resources
02-21-2013, 10:05 PM
Replies:
7
Port Wine + Pigmentation Loss
Views:
8
Posted By
abatie
I guess I don't have any real input after seeing...
I guess I don't have any real input after seeing the pictures. Sorry!
Forum:
Port Wine Stain Help and Resources
02-20-2013, 10:07 PM
Replies:
7
Port Wine + Pigmentation Loss
Views:
8
Posted By
abatie
Do you have a picture? Maybe your diagnosis...
Do you have a picture? Maybe your diagnosis isn't correct!
Forum:
Help and Resources for Hemangiomas
02-15-2013, 02:06 AM
Replies:
91
Hemangioma on Nose
Views:
92
Posted By
abatie
Oh my has she grown up!!! I remember the posts...
Oh my has she grown up!!! I remember the posts as a baby! She is beautiful!
Alison
Forum:
CMTC
02-15-2013, 01:24 AM
Replies:
0
2013 CMTC Conference
Views:
1
Posted By
abatie
2013 CMTC Conference
I just wanted to let anyone know who may be here looking for information on CMTC that the date of the 2013 conference has been set. The location has been moved to St. Louis, Missouri and will be...
Forum:
Port Wine Stain Help and Resources
01-14-2013, 04:32 PM
Replies:
4
greetings and questions
Views:
5
Posted By
abatie
Pictures would be helpful! I am wondering about...
Pictures would be helpful! I am wondering about CMTC because of the change with temperature. PWS can be very extensive. CMTC can also be very extensive.
Forum:
CMTC
12-19-2012, 06:29 PM
Replies:
3
Gavins Story
Views:
4
Posted By
abatie
Becca has also seen the doctor from the...
Becca has also seen the doctor from the Netherlands. Becca had many complications when she was younger but thankfully some of those issues have started to resolve (including three holes in her...
Forum:
CMTC
12-19-2012, 02:25 AM
Replies:
3
Gavins Story
Views:
4
Posted By
abatie
Great to see another CMTC parent here. I was the...
Great to see another CMTC parent here. I was the only one active for a long time. I don't check in as often here anymore as it seems there are not a lot of people posting here. I have a daughter...
Forum:
CMTC
09-24-2012, 03:07 AM
Replies:
2
Please help me
Views:
3
Posted By
abatie
Curis marmorata is that purple coloring babies...
Curis marmorata is that purple coloring babies get when they are cold or upset. As the skin matures it does go away. CMTC is a vascular birthmark that doesn't go away. It may lighten some as your...
Forum:
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
09-23-2012, 12:58 PM
Replies:
20
Looking for lymphangioma or hemangiolymphangioma specialists and treatment
Views:
7,043
Posted By
abatie
Try checking in the "Find a Doctor"...
Try checking in the "Find a Doctor" section or contact one of the medical experts with your question under the resources tab. In that section there is an "Ask an Expert". You may also want to send...
Forum:
Port Wine Stain Help and Resources
09-02-2012, 03:55 PM
Replies:
3
painful - any ideas????
Views:
4
Posted By
abatie
I would also suggest compression socks. You do...
I would also suggest compression socks. You do need to find a new doctor ASAP though so that you can find out if there is a more appropriate option. Hopefully you can get some relief until you find...
Forum:
Port Wine Stain Help and Resources
08-10-2012, 01:43 AM
Replies:
3
PWS on leg and leg length discrepancy
Views:
4
Posted By
abatie
Our daughter has a LLD in her leg. She was...
Our daughter has a LLD in her leg. She was having pain in her hip, back, and knee and so we had a custom lift made for her. Took care of all the pain. Becca was also evaluated for KT syndrome at...
Forum:
General Resources
07-19-2012, 01:40 AM
Replies:
9
How to get an MRI?
Views:
10
Posted By
abatie
Glad that your insurance approved it. Hopefully...
Glad that your insurance approved it. Hopefully you will have some answers soon!
Forum:
General Resources
07-09-2012, 04:36 PM
Replies:
9
How to get an MRI?
Views:
10
Posted By
abatie
I would find someone who specializes in vascular...
I would find someone who specializes in vascular malformations. A primary care physician might not know enough to even go ahead and order the MRI. It might end up in you going to more appointments...
Forum:
AVM Help and Resources
07-07-2012, 12:46 PM
Replies:
7
VM and Dr. Levitin
Views:
8
Posted By
abatie
Insurance is always a big fight. My family has...
Insurance is always a big fight. My family has had an easier time now but when my daughter was first diagnosed with CMTC we had a tons of issues. Claims would come back saying it wasn't covered...
Forum:
Port Wine Stain Help and Resources
07-05-2012, 07:35 PM
Replies:
13
PWS on Leg - Concerned parent - what to look for
Views:
14
Posted By
abatie
There is research done at Mayo Clinic about the...
There is research done at Mayo Clinic about the long-term effects of anesthesia on children under two. It is about the fact that the more exposures under two the increased chance of learning...
Forum:
CMTC
07-04-2012, 03:50 AM
Replies:
1
Update
Views:
2
Posted By
abatie
Update
I thought to myself today that I had not updated here on Becca's last appointment at Mayo and so this is overdue. I am usually the first person to be skeptical of "the wait and see" approach. That...
Forum:
Port Wine Stain Help and Resources
07-02-2012, 11:12 AM
Replies:
13
PWS on Leg - Concerned parent - what to look for
Views:
14
Posted By
abatie
Does this marking change color? Like whe crying...
Does this marking change color? Like whe crying very hard, cold, or at bath time?
Forum:
Port Wine Stain Help and Resources
07-02-2012, 11:11 AM
Replies:
13
PWS on Leg - Concerned parent - what to look for
Views:
14
Posted By
abatie
Okay so first off my child doesn't have a PWS but...
Okay so first off my child doesn't have a PWS but rather CMTC but has it all over one leg so I understand the size of what you are looking at and dealing with. I had the same experience as you in...
Forum:
CMTC
06-21-2012, 09:19 PM
Replies:
0
USA CMTC-OVM Conference
Views:
1
Posted By
abatie
USA CMTC-OVM Conference
Anyone who is affected by CMTC and looking for more information should try to attend the US CMTC-OVM Conference on July 14. The conference is held near Washington D.C. Our family is excited to...
Forum:
Help and Resources for Hemangiomas
06-07-2012, 11:49 PM
Replies:
62
Stork Bites, Angel Kisses, Salmon Patches
Views:
1,834
Posted By
abatie
Becca had a stork bite between her eyes and it...
Becca had a stork bite between her eyes and it completely faded by about a year of age. Sometimes when she cries really, really hard you can tell where it was because the spot is darker than the...
Forum:
Port Wine Stain Help and Resources
04-28-2012, 01:53 AM
Replies:
10
2 month old baby with large PWS
Views:
11
Posted By
abatie
Does it change color when cold or when he is...
Does it change color when cold or when he is upset? How about at bath or when running a fever? Is there any difference in the size of his legs in either length or girth?
Alison
Forum:
Port Wine Stain Help and Resources
04-27-2012, 02:46 AM
Replies:
10
2 month old baby with large PWS
Views:
11
Posted By
abatie
I can't remember because I joined a really long...
I can't remember because I joined a really long time ago. If you do have to join it is the CMTC international president that runs it (his name is Lex). If you search CMTC on the Internet you should...
Forum:
Help and Resources for Hemangiomas
04-25-2012, 05:45 PM
Replies:
28
LUMBAR Syndrome
Views:
29
Posted By
abatie
She is potty training now and actually has done...
She is potty training now and actually has done well. She was late to roll (but that may have been related to CMTC because it was on the affected side) and she was late to crawl (also could be...
Forum:
Help and Resources for Hemangiomas
04-24-2012, 06:47 PM
Replies:
28
LUMBAR Syndrome
Views:
29
Posted By
abatie
Thanks for the information! Becca is two (will...
Thanks for the information!
Becca is two (will be three in July). We actually have Avera insurance but have seen one Sanford doctor for orthopedics. We have not been to any Avera providers in...
Showing results 1 to 25 of 229
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