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Search: Posts Made By: xrox
Forum: General Resources 06-20-2012, 03:39 PM
Replies: 1
Views: 2
Posted By xrox
It somewhat looks like a slow flow vascular...

It somewhat looks like a slow flow vascular malformation (venous malformation). IMO if you want a proper diagnosis you could try to see a specialist in vascular malformations.
Forum: AVM Help and Resources 01-17-2012, 05:27 AM
Replies: 10
Views: 11
Posted By xrox
Robert, I too am a father to a child with a...

Robert,

I too am a father to a child with a venous malformation. From your post it sounds like your son has developed a blood clot which can be very painful. My daughter develops these clots often...
Forum: Port Wine Stain Help and Resources 08-17-2010, 08:41 PM
Replies: 14
Views: 711
Posted By xrox
It has been a while since I posted in this thread...

It has been a while since I posted in this thread so I'll give you an update. Firstly, we saw countless so called experts on vascular marks and all I can say is that nearly all of them scared me with...
Forum: AVM Help and Resources 06-09-2010, 08:10 PM
Replies: 8
Views: 2,064
Posted By xrox
Try Dr. Josee Dubois in Montreal Ste Justine...

Try Dr. Josee Dubois in Montreal Ste Justine Hospital. She is very good. She does sclerotherapy using STS foam.

Note that in Canada they will not do sclerotherapy unless your VM is significantly...
Forum: Port Wine Stain Help and Resources 04-15-2010, 02:31 AM
Replies: 23
Views: 659
Posted By xrox
Very true. I consider myself an expert on the...

Very true. I consider myself an expert on the subject after both my daughters have vascular marks and can not believe at what some well known specialists have told me.

Regarding Stork Bites and PWS...
Forum: AVM Help and Resources 03-11-2010, 03:07 PM
Replies: 15
Views: 16
Posted By xrox
My daughter has a very similar venous...

My daughter has a very similar venous malformation on her foot except hers is right through the thickness of her foot. There are many options for treatment.

1 - Surgical resection
2 -...
Forum: AVM Help and Resources 03-09-2010, 07:04 PM
Replies: 15
Views: 16
Posted By xrox
According to a lot of the current medical...

According to a lot of the current medical journals there is no such thing as an adult hemangioma. I am no doctor but the swelling on your hand looks like a "Venous Malformation". If the swelling is...
Forum: AVM Help and Resources 08-14-2009, 03:23 PM
Replies: 10
Views: 981
Posted By xrox
No date yet. I've just been in contact through...

No date yet. I've just been in contact through email and we have to figure out insurance before we make an appointment.

If anyone is interested here are some good info on STS...
Forum: AVM Help and Resources 08-14-2009, 03:41 AM
Replies: 10
Views: 981
Posted By xrox
Thanks for trying :) I managed to get in contact...

Thanks for trying :) I managed to get in contact with a pediatric VM specialist in Montreal named Josee Dubois. She is willing to see our daughter.

Her method of treatment is foam STS...
Forum: AVM Help and Resources 08-13-2009, 03:07 PM
Replies: 10
Views: 981
Posted By xrox
Thanks everyone. I look forward to any info you...

Thanks everyone. I look forward to any info you might find. I contacted the expert member for VMs and he agrees that (venous)VM is the likely diagnosis.

Also, we seem to have stabalized it's...
Forum: AVM Help and Resources 08-06-2009, 09:23 PM
Replies: 10
Views: 981
Posted By xrox
Also, I would love to contact member Donovan to...

Also, I would love to contact member Donovan to discuss her experiences with finding help in Canada, or any other members seeking treatment in Toronto or Montreal.

Cheers,
Xrox
Forum: AVM Help and Resources 07-27-2009, 04:26 PM
Replies: 10
Views: 981
Posted By xrox
Looking for competent doc in Toronto

I'm one of those parent internet doctors that real doctors hate :) I've ended up here after self diagnosing my child thanks to clueless doctors.

When our daughter was born, one of her toenails was...
Forum: Port Wine Stain Help and Resources 01-24-2009, 04:43 AM
Replies: 14
Views: 711
Posted By xrox
Here are some pics of our little angel. ...

Here are some pics of our little angel. Birthmark is on the left eyelid (right eye in picture) and red dot on the nose as well. The second picture was took in sunlight which brings out the red color...
Forum: Port Wine Stain Help and Resources 01-23-2009, 09:20 PM
Replies: 14
Views: 711
Posted By xrox
It was read from the clinical portion of the...

It was read from the clinical portion of the following
http://emedicine.medscape.com/article/1177523-overview

Our pediatrician and family physician both said it was a harmless vascular birthmark...
Forum: Port Wine Stain Help and Resources 01-23-2009, 03:03 AM
Replies: 14
Views: 711
Posted By xrox
SWS questions

Daughter has a PWS isolated on her upper left eyelid along with a small PWS on her nose.

I am wondering who to believe when I read contradicting evidence on SWS/Glaucoma when eyelid is...
Showing results 1 to 15 of 15

 
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