VBF
Birthmarks
Treatment
Resources
Research Studies
Register
Donate
Community
Forum
Vascular Birthmarks Foundation Forum
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
FAQ
Members List
Calendar
Search
Today's Posts
Mark Forums Read
Page 1 of 2
1
2
>
Showing results 1 to 25 of 28
Search took
0.01
seconds.
Search:
Posts Made By:
momofAddie
Forum:
Port Wine Stain Help and Resources
06-29-2008, 03:20 PM
Replies:
10
Port wine stain treatment - General Anaesthesia
Views:
2,446
Posted By
momofAddie
Hi. My daughter has received six treatments, all...
Hi. My daughter has received six treatments, all under general anesthesia. Her first was at 4 months of age. I am a sedation nurse at a pediatric cancer hospital. We have some patients that receive...
Forum:
Port Wine Stain Help and Resources
06-15-2008, 02:52 PM
Replies:
6
Need Advice-Next step?
Views:
1,283
Posted By
momofAddie
I am glad it went so well. I am really excited to...
I am glad it went so well. I am really excited to see the results! Email me the Pics to my personal email. I'll send you an email requesting in case you do not still have it. Thanks,Kim
Forum:
Port Wine Stain Help and Resources
06-10-2008, 01:10 AM
Replies:
2
Help financially with travel
Views:
957
Posted By
momofAddie
financial help
Missy,
Thank you so much for the information. I really appreciate it. I'm glad there are some things out there.
Kim
Forum:
Port Wine Stain Help and Resources
06-08-2008, 02:41 AM
Replies:
2
Help financially with travel
Views:
957
Posted By
momofAddie
Help financially with travel
I was just wondering if there is any organization out there that helps families like us with travel expenses? We may be traveling to California in a few months and with all the medical expenses we...
Forum:
Port Wine Stain Help and Resources
06-05-2008, 03:32 AM
Replies:
5
Help - New Parent and PWS..
Views:
1,343
Posted By
momofAddie
Johnathan, My daughter is on her 6th treatment....
Johnathan,
My daughter is on her 6th treatment. She has a right sided facial PWS that extends below the right eyelid to the bottom of he lip. The stain goes above her top lip to the midline of her...
Forum:
Port Wine Stain Help and Resources
06-05-2008, 03:23 AM
Replies:
5
Sun exposure after laser treatment
Views:
1,330
Posted By
momofAddie
Information
Thanks to everyone for your support! I broke down today and called Addie's doctor's nurse. She was very reassuring to me. She said that while the spots are purple, we should really minimize the sun...
Forum:
Port Wine Stain Help and Resources
06-02-2008, 02:03 AM
Replies:
5
Sun exposure after laser treatment
Views:
1,330
Posted By
momofAddie
Sun exposure after laser treatment
My daughter just had her 6th treatment by PDL on her right facial PWS. I should be a pro by now, but cannot remember the recommendations for sun exposure after treatment. I remember my doctor saying...
Forum:
Port Wine Stain Help and Resources
05-26-2008, 09:32 PM
Replies:
6
Need Advice-Next step?
Views:
1,283
Posted By
momofAddie
Thanks
Great. Thanks. Let me know how the visit with Dr. Nelson goes. My daughter is having treatment on Thursday. I will see how that goes, although I feel as though we will not get any result on her lip....
Forum:
Port Wine Stain Help and Resources
05-21-2008, 11:22 PM
Replies:
6
Need Advice-Next step?
Views:
1,283
Posted By
momofAddie
Need Advice-Next step?
Hello. It has been awhile since I have posted. My daughter, Addie, is now 18 months old and is scheduled to have her 6th laser treatment next week. She has a right sided facial PWS. We have had...
Forum:
Port Wine Stain Help and Resources
07-03-2007, 07:13 PM
Replies:
9
Eczema with PWS
Views:
2,098
Posted By
momofAddie
still having eczema probs
Just wondering...did you have the name of the herbal remedy and/or herbalists?
thanks
Forum:
Port Wine Stain Help and Resources
07-03-2007, 05:23 PM
Replies:
3
Laser treatment and scarring
Views:
1,220
Posted By
momofAddie
Laser treatment and scarring
My daughter is 7 months old and had her 2nd laser treatment on her right facial PWS 2 weeks ago. I am noticing two suspicious spots around her lip. The area looks a lot different than last time as...
Forum:
Port Wine Stain Help and Resources
05-16-2007, 05:48 PM
Replies:
15
Issues with gums
Views:
3,338
Posted By
momofAddie
PWS and gums
I took my daughter to get checked out by the pediatric dentist. He stated there was no PWS on the gum area, but we would just watch and wait. I hate all of this watch and wait stuff.... I wish...
Forum:
Port Wine Stain Help and Resources
05-07-2007, 01:05 AM
Replies:
9
Eczema with PWS
Views:
2,098
Posted By
momofAddie
You know, I need to get her to explain. She just...
You know, I need to get her to explain. She just said some children with PWS on their face also have eczema. I didn't asked if it was related or not (ie an icreased incidence in patients with PWS). I...
Forum:
Port Wine Stain Help and Resources
05-06-2007, 10:57 PM
Replies:
9
Eczema with PWS
Views:
2,098
Posted By
momofAddie
Eczema with PWS
My daughter has some patches of eczema on her face, including on her PWS. My doctor says this is somewhat common. Has anybody else experienced this? Does it improve with time? What did/do you do for...
Forum:
Port Wine Stain Help and Resources
05-06-2007, 03:03 AM
Replies:
19
3 month old with PWS-Questions
Views:
3,159
Posted By
momofAddie
Anesthesia for laser therapy
When Addie had her laser therapy, I asked A LOT of questions concerning her anesthesia. She is treated at Arkansas Children's Hospital. She received general anesthesia with a mask. They gave her...
Forum:
Port Wine Stain Help and Resources
05-05-2007, 11:48 PM
Replies:
19
3 month old with PWS-Questions
Views:
3,159
Posted By
momofAddie
Ah hah! Now I've got the V2 answer. Sorry, my...
Ah hah! Now I've got the V2 answer. Sorry, my brain didn't work there for a second. Does anyone know about the rating though?
thanks,
kim
Forum:
Port Wine Stain Help and Resources
05-05-2007, 11:44 PM
Replies:
19
3 month old with PWS-Questions
Views:
3,159
Posted By
momofAddie
Hello. I'm encouraged by the comments. My...
Hello. I'm encouraged by the comments. My daughter is 5 months old and had her first treatment under general anesthesia 1 month ago. I have lots of pictures (ie. pre and post first treatment) if you...
Forum:
Port Wine Stain Help and Resources
04-30-2007, 08:57 PM
Replies:
10
Worried Grandfather
Views:
1,958
Posted By
momofAddie
Good Luck! Kim:)
Good Luck!
Kim:)
Forum:
Port Wine Stain Help and Resources
04-28-2007, 01:13 PM
Replies:
10
Worried Grandfather
Views:
1,958
Posted By
momofAddie
Congratulations on your new addition to your...
Congratulations on your new addition to your family!My daugter is 5 months old with a PWS on her face. The advice I can offer you is to let your daughter deal with this at her own pace. Just be there...
Forum:
Port Wine Stain Help and Resources
04-22-2007, 06:59 PM
Replies:
15
Daughter with PWS:insurance woes
Views:
3,002
Posted By
momofAddie
Thanks for your support. I'm still fighting! :)...
Thanks for your support. I'm still fighting!
:) momofaddie
Forum:
Port Wine Stain Help and Resources
04-20-2007, 04:22 PM
Replies:
15
Daughter with PWS:insurance woes
Views:
3,002
Posted By
momofAddie
Update. I met with my benefits director at my...
Update. I met with my benefits director at my company. She states that we fall in a "gap" in our plan. No exceptions will be made. The out of network rate is to assist those that choose to go out of...
Forum:
Port Wine Stain Help and Resources
04-19-2007, 08:42 PM
Replies:
12
Do all PWS get bigger and cause other problems?
Views:
2,192
Posted By
momofAddie
Physician in Florida
Have you gone to http://www.birthmark.org/physicians_list.php, yet? Follow the directions and it will direct you to a physician. Hope you get some help. We were very blessed that our pediatrician...
Forum:
Port Wine Stain Help and Resources
04-19-2007, 12:11 AM
Replies:
2
Can someone tell me how insurance appeal works
Views:
968
Posted By
momofAddie
Insurance appeals
All insurances are different..that's the first problem. I can tell you what I did with mine. I live in Tennessee and have Principal Financial insurance through my job. My child's doctor and her staff...
Forum:
Port Wine Stain Help and Resources
04-18-2007, 11:29 PM
Replies:
15
Daughter with PWS:insurance woes
Views:
3,002
Posted By
momofAddie
on this website? what website do I go to? thanks!
on this website? what website do I go to? thanks!
Forum:
Port Wine Stain Help and Resources
04-16-2007, 03:25 PM
Replies:
12
Do all PWS get bigger and cause other problems?
Views:
2,192
Posted By
momofAddie
I am new at this being my child is just 4 months...
I am new at this being my child is just 4 months old. Her PWS is on her face, but I am assuming what I was told would be applicable to all PWS. It is my understanding that some PWS are slow growing...
Showing results 1 to 25 of 28
Page 1 of 2
1
2
>
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
General Category
Announcements
Hemangioma Help
Help and Resources for Hemangiomas
Twins With Birthmarks
CMTC
Lymphatic Malformations (also known as cystic hygroma and lymphangioma)
Port Wine Stain Help
Port Wine Stain Help and Resources
AVM Help
AVM Help and Resources
Additional Resources
General Resources
Individuals Living with Birthmarks
Youth and Teen Support
Contact an Individual Privately, or join the Kid's Support Group
Living with a birthmark - my story
Adults Living with Birthmarks