Vascular Birthmarks Foundation Forum - Search Results
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Search Forums

Showing results 1 to 25 of 443
Search took 0.07 seconds.
Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas 05-24-2015, 03:21 AM
Replies: 4
Views: 5
Posted By smurph
Lucia, I have never heard of the use of that...

Lucia,
I have never heard of the use of that medication for hemangiomas. I will look into it.
Shannon
Forum: Help and Resources for Hemangiomas 05-24-2015, 03:18 AM
Replies: 4
Views: 5
Posted By smurph
Hi Sonia, I wanted to mention that my daughter...

Hi Sonia,
I wanted to mention that my daughter had a hemangioma on her hand too and it got lacy around that age as well. It takes a while to fade but amazingly it did fade on its own. I am curious...
Forum: Help and Resources for Hemangiomas 05-06-2015, 02:38 AM
Replies: 8
Views: 4,627
Posted By smurph
Hi there! I know this original post was from a...

Hi there! I know this original post was from a few years ago but I wanted to let you (Yazilos) know that my daughter had a very similar hemangioma on her hand and wrist and it totally went away on...
Forum: Help and Resources for Hemangiomas 04-23-2015, 12:52 AM
Replies: 1
Views: 2
Posted By smurph
Wow! That is so great! Thanks for sharing. :) If...

Wow! That is so great! Thanks for sharing. :) If you email Missy, she can help post pictures:

contact@birthmark.org

Shannon
Forum: Help and Resources for Hemangiomas 04-11-2015, 01:13 AM
Replies: 3
Views: 4
Posted By smurph
Great news!!!! :) Please keep us posted and let...

Great news!!!! :) Please keep us posted and let us know how everything goes! I don't have any advice about travelling to NY with a toddler. I do have some pre-surgery advice. In the weeks leading...
Forum: Help and Resources for Hemangiomas 03-26-2015, 02:56 AM
Replies: 18
Views: 617
Posted By smurph
Great news! Thanks for letting us know how it...

Great news! Thanks for letting us know how it was going!
Shannon
Forum: Help and Resources for Hemangiomas 03-06-2015, 12:39 AM
Replies: 7
Views: 8
Posted By smurph
That makes sense...we did Faith's surgery right...

That makes sense...we did Faith's surgery right before Kindergarten too. Good luck! Let us know how everything goes!
Shannon
Forum: Help and Resources for Hemangiomas 03-05-2015, 02:27 AM
Replies: 7
Views: 8
Posted By smurph
It's hard to say- Faith's was mostly done because...

It's hard to say- Faith's was mostly done because of the ulceration scar she had and so her lip was uneven with like a "divot" So I think the surgeon basically removed the scar tissue and that made...
Forum: Help and Resources for Hemangiomas 03-04-2015, 03:19 AM
Replies: 7
Views: 8
Posted By smurph
I just wanted to let you know that my daughter...

I just wanted to let you know that my daughter also had a debulking surgery for her upper lip hemangioma. I expected to see the results right away and I remember feeling really worried about 2 weeks...
Forum: Help and Resources for Hemangiomas 02-26-2015, 09:01 PM
Replies: 7
Views: 8
Posted By smurph
Hi there! My daughter had an upper lip...

Hi there! My daughter had an upper lip hemangioma that sort of extended up into the skin between her lip and nose. This was 10 years ago so the treatments were a bit different back then. She did...
Forum: Help and Resources for Hemangiomas 02-26-2015, 04:45 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! There a few doctors listed on this...

Hi there! There a few doctors listed on this site if you click on Find a Doctor and then go to the listing for Pennsylvania. You can try to check some of those out. Hopefully someone from that area...
Forum: Help and Resources for Hemangiomas 02-13-2015, 01:29 AM
Replies: 9
Views: 10
Posted By smurph
Missy, I'm on my way! hahahaha!! I wish! Shannon

Missy, I'm on my way! hahahaha!! I wish!
Shannon
Forum: Help and Resources for Hemangiomas 02-12-2015, 12:55 PM
Replies: 9
Views: 10
Posted By smurph
I have twins too! :) My last 2 girls are twins. ...

I have twins too! :) My last 2 girls are twins. So mine are ages 11,9, and 2 six year olds. Life is never dull-that is for sure! My sister has boy/girl twins too. I love having twins although at...
Forum: Help and Resources for Hemangiomas 02-12-2015, 02:10 AM
Replies: 1
Views: 2
Posted By smurph
I am not sure. I think the best thing to do, is...

I am not sure. I think the best thing to do, is call a pharmacist or the doctor to ask. That way you can be confident that you are doing it correctly, since it is a medication! :)
Shannon
Forum: Help and Resources for Hemangiomas 02-12-2015, 02:08 AM
Replies: 9
Views: 10
Posted By smurph
Hi there! Oh my goodness....he is sooo adorable!...

Hi there! Oh my goodness....he is sooo adorable! I know that every hemangioma is different so it is hard to say, but I can tell you of my own experience. 3 out of my 4 daughters have had...
Forum: Help and Resources for Hemangiomas 02-07-2015, 10:03 PM
Replies: 1
Views: 2
Posted By smurph
It's hard to tell if it's a hemangioma or not,...

It's hard to tell if it's a hemangioma or not, but I think you don't have too much to be alarmed about-if it has only grown to be this size by this point, it will probably not grow too large. 3 out...
Forum: Help and Resources for Hemangiomas 02-04-2015, 01:04 PM
Replies: 4
Views: 5
Posted By smurph
Hi! If I were you I would get checked by a...

Hi! If I were you I would get checked by a specialist to ensure you have a proper diagnosis and also to see if there's anything can be done to help with the pain. Where are you located? Have you seen...
Forum: Help and Resources for Hemangiomas 02-02-2015, 04:11 AM
Replies: 4
Views: 5
Posted By smurph
Hi! It sounds like what you are describing might...

Hi! It sounds like what you are describing might not be a hemangioma...usually they start to disappear around 1 year of age and don't usually cause pain, etc. at that age. Have you see a vascular...
Forum: Help and Resources for Hemangiomas 02-02-2015, 04:09 AM
Replies: 4
Views: 5
Posted By smurph
Hi there! My daughter had an upper lip hemangioma...

Hi there! My daughter had an upper lip hemangioma but it was about 10 years ago and treatment was different back then. I'm not too sure about the timolol near her mouth- can you call the pharmacy and...
Forum: Help and Resources for Hemangiomas 02-02-2015, 04:05 AM
Replies: 9
Views: 10
Posted By smurph
So glad you got to see Dr. Levitin! You are in...

So glad you got to see Dr. Levitin! You are in great hands!
Shannon
Forum: Help and Resources for Hemangiomas 02-02-2015, 04:03 AM
Replies: 18
Views: 617
Posted By smurph
Good luck with your appointment! Shannon

Good luck with your appointment!
Shannon
Forum: Help and Resources for Hemangiomas 02-02-2015, 04:01 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! My daughter had a lip hemangioma but...

Hi there! My daughter had a lip hemangioma but it was on her upper lip..it grew very fast from the time she was born and involved much of her upper lip and the skin under her nose. Ironically, when...
Forum: Help and Resources for Hemangiomas 02-02-2015, 03:51 AM
Replies: 8
Views: 364
Posted By smurph
I think you can feel comfortable with your...

I think you can feel comfortable with your doctor's opinion on it- I mean, it's hard to say for sure. I think you are doing a good thing by taking pictures on a regular basis...if you feel like...
Forum: Help and Resources for Hemangiomas 02-02-2015, 03:44 AM
Replies: 3
Views: 56
Posted By smurph
Hi there! I hope he did well. I was surprised by...

Hi there! I hope he did well. I was surprised by the bruising when my daughter had laser on her hemangioma. It seemed to take longer to go away than I had thought- but after that I was amazed by the...
Forum: Help and Resources for Hemangiomas 01-18-2015, 09:58 PM
Replies: 18
Views: 617
Posted By smurph
I'm not sure how the medical system works in the...

I'm not sure how the medical system works in the UK but I would definitely say it looks more like a hemangioma than a portwine stain. Lip hemangiomas often need treatment because of the risks of...
Showing results 1 to 25 of 443

 
Forum Jump