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Search: Posts Made By: Tessamarie
Forum: Help and Resources for Hemangiomas 10-27-2010, 05:41 PM
Replies: 9
Views: 10
Posted By Tessamarie
I have been to Sick Kids for treatment of H on...

I have been to Sick Kids for treatment of H on forehead and a nasal H (two of my kids have Hs). They do prefer the wait and see approach, the wait to get in and then the countless appointments have...
Forum: Help and Resources for Hemangiomas 07-14-2010, 04:18 PM
Replies: 9
Views: 10
Posted By Tessamarie
My daughter's small H on her eyebrow stopped...

My daughter's small H on her eyebrow stopped growing and disappeared around 18 months. Her larger one on her forehead stopped growing around 18 months but it is still there (just slightly faded). She...
Forum: Help and Resources for Hemangiomas 05-21-2010, 09:20 PM
Replies: 19
Views: 20
Posted By Tessamarie
Honestly, if it is so common, I don't understand...

Honestly, if it is so common, I don't understand either why no one recognizes it for what it is. And...I must admit too, it has given me the utmost of understanding and compassion towards those...
Forum: Help and Resources for Hemangiomas 05-21-2010, 03:19 PM
Replies: 19
Views: 20
Posted By Tessamarie
I've had the rudest things said to me about my...

I've had the rudest things said to me about my daughter (who has a big H on her forehead)- including people accusing me of dropping her on her head, etc. I either tell people that it is a hemangioma...
Forum: Help and Resources for Hemangiomas 04-28-2010, 02:16 AM
Replies: 3
Views: 4
Posted By Tessamarie
Yes, I agree. I am pushing to get in sooner too....

Yes, I agree. I am pushing to get in sooner too. My doc assumes that if it hasn't grown by now, it's not going to and therefore it may not be a H at all (according to the doc). I am not sure if that...
Forum: Help and Resources for Hemangiomas 04-27-2010, 06:10 PM
Replies: 3
Views: 4
Posted By Tessamarie
When is it considered stable?

My second daughter was born with a birthmark on her nose tip. Her nose tip is also quite bulbous. We were concerned that it was a H (like her older sister has), however, the mark remains, the nose is...
Forum: Help and Resources for Hemangiomas 03-18-2010, 03:43 AM
Replies: 91
Views: 92
Posted By Tessamarie
Oh and bumfuzzle- your baby is ADORABLE!

Oh and bumfuzzle- your baby is ADORABLE!
Forum: Help and Resources for Hemangiomas 03-18-2010, 03:43 AM
Replies: 91
Views: 92
Posted By Tessamarie
The update for us is that we did get a referral...

The update for us is that we did get a referral to Dr.Pope at sick kids for my second daughter who has a possible nasal H. The bad news--it is in Sept! I am going to call to see if I can get on a...
Forum: Help and Resources for Hemangiomas 03-05-2010, 04:28 PM
Replies: 10
Views: 11
Posted By Tessamarie
EFMomma: Do you happen to have pictures of the...

EFMomma: Do you happen to have pictures of the involution process for your kids? Especially the one with the forehead H? My DD is now 21 months old and I "think" we are seeing signs of the involution...
Forum: Help and Resources for Hemangiomas 03-03-2010, 01:36 AM
Replies: 91
Views: 92
Posted By Tessamarie
Apparently I was told at Sick Kids that they...

Apparently I was told at Sick Kids that they thought that most H's go away on their own and then if they don't, then they use propranolol. However, from what I've read it does seem awful late to be...
Forum: Help and Resources for Hemangiomas 03-02-2010, 05:01 PM
Replies: 91
Views: 92
Posted By Tessamarie
I have an appointment this week with my regular...

I have an appointment this week with my regular doc. I will insist on a referral to a specialist. Her H is getting worse- it is looking more swollen under the skin and I can tell her breathing is...
Forum: Help and Resources for Hemangiomas 02-27-2010, 04:47 PM
Replies: 91
Views: 92
Posted By Tessamarie
We were seeing a doc at Sick Kids too-...

We were seeing a doc at Sick Kids too- Dr.Lansang- for my older daughter's hemangioma. They decided to wait and see until the age of 2 and then we'll do propranolol.
I am nto sure what approach we...
Forum: Help and Resources for Hemangiomas 02-26-2010, 06:43 PM
Replies: 91
Views: 92
Posted By Tessamarie
Hi: here is the update, our family doctor said...

Hi: here is the update, our family doctor said that it may or may not be a hemangioma and to wait and see. I need her to do the referral to see a specialist so I am a bit frustrated with the whole...
Forum: Help and Resources for Hemangiomas 02-26-2010, 06:11 PM
Replies: 2
Views: 559
Posted By Tessamarie
I would love to know how the surgery went and if...

I would love to know how the surgery went and if you have before and after pictures. I believe my daughter also has a nasal tip hemangioma. Thanks so much!
Forum: Help and Resources for Hemangiomas 02-24-2010, 09:10 PM
Replies: 91
Views: 92
Posted By Tessamarie
Hi: I think my daughter has the start of a...

Hi: I think my daughter has the start of a hemangioma on her nose. Her sister has one on her forehead so I have an idea of the general looks of the starting phase of it. I am going to post a picture...
Forum: Help and Resources for Hemangiomas 02-24-2010, 09:06 PM
Replies: 30
Views: 31
Posted By Tessamarie
Here is a recent pic of my daughter. I'd be...

Here is a recent pic of my daughter. I'd be curious to know if anyone has seen a swollen nose like this (the bulb of her nose looks swollen) with a red mark (which I think is a hemangioma but I'd...
Forum: Help and Resources for Hemangiomas 02-23-2010, 09:15 PM
Replies: 30
Views: 31
Posted By Tessamarie
How do I find that section of the forum?

How do I find that section of the forum?
Forum: Help and Resources for Hemangiomas 02-23-2010, 08:17 PM
Replies: 30
Views: 31
Posted By Tessamarie
Oh one more thing, if it is a H on her nose, is...

Oh one more thing, if it is a H on her nose, is the treatment different than the wait and see approach because it is somewhere where it can restrict breathing? Should I seek treatment immediately...
Forum: Help and Resources for Hemangiomas 02-23-2010, 08:13 PM
Replies: 30
Views: 31
Posted By Tessamarie
Swollen nose tip & hemangioma??

We had our second daughter and her nose has looked odd since birth. It is quite swollen at the tip and there is a very tiny red dot. I believe it is probably a H (her older sister has one on her...
Forum: Help and Resources for Hemangiomas 02-04-2010, 06:20 PM
Replies: 5
Views: 6
Posted By Tessamarie
My daughter has one that is very similar. It grew...

My daughter has one that is very similar. It grew rapidly until about 12 months. She ended up having a compound one- it grew under the skin too. It didn't grow too huge, but was prominent on her...
Forum: Help and Resources for Hemangiomas 01-11-2010, 08:28 PM
Replies: 17
Views: 18
Posted By Tessamarie
The doc said that they use two years old as the...

The doc said that they use two years old as the marker for progress (or no progress). She said it is still all "cosmetic" as far as giving her propranolol and she understood that my daughter is...
Forum: Help and Resources for Hemangiomas 01-11-2010, 01:54 AM
Replies: 17
Views: 18
Posted By Tessamarie
I would like to think she is in the involution...

I would like to think she is in the involution stage, however, at our most recent appointment last week the specialist felt that there wasn't great progress lately. She said that we are to come back...
Forum: Help and Resources for Hemangiomas 01-07-2010, 07:31 PM
Replies: 17
Views: 18
Posted By Tessamarie
So far, we have heard that steroid injections...

So far, we have heard that steroid injections would probably not be helpful for us. We were not told about the scarring, just that they didn't think it would work. They did suggest topical steroids,...
Forum: Help and Resources for Hemangiomas 01-06-2010, 07:42 PM
Replies: 17
Views: 18
Posted By Tessamarie
juliemeshanko: I do think you are doing the right...

juliemeshanko: I do think you are doing the right thing by getting as educated as possible. We have done the same and are consulting specialists too as she has progressed through the different stages...
Forum: Help and Resources for Hemangiomas 01-06-2010, 01:04 PM
Replies: 17
Views: 18
Posted By Tessamarie
When I saw the pic of your baby, I thought of...

When I saw the pic of your baby, I thought of another set of pictures I saw on another woman's blog when I was searching for answers too on my daughter's compound H. Here are pictures & a description...
Showing results 1 to 25 of 77

 
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