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Search: Posts Made By: RsMom
Forum: Help and Resources for Hemangiomas 05-01-2011, 09:46 PM
Replies: 10
Views: 11
Posted By RsMom
My daughter just turned 1 and is weaned...

My daughter just turned 1 and is weaned completely. It was a slow process though because we tried to wean her a little too early and had some rebound. After weaning completely, her hemangioma grew...
Forum: Help and Resources for Hemangiomas 12-26-2010, 05:55 PM
Replies: 6
Views: 7
Posted By RsMom
You must be right. Last week we saw the doctor...

You must be right. Last week we saw the doctor and decided to start weening my daughter. Shes now at twice per day. So far so good!
Forum: Help and Resources for Hemangiomas 12-22-2010, 04:48 PM
Replies: 11
Views: 914
Posted By RsMom
What a cutie! My daughter had a very similar H...

What a cutie! My daughter had a very similar H but it was on her nasal fold. When it was about the size of your son's (but she was 3 months), we started propranolol and it is nearly gone now (she's...
Forum: Help and Resources for Hemangiomas 12-10-2010, 03:32 PM
Replies: 6
Views: 7
Posted By RsMom
doses of propranolol per pay?

Just curious how many times per day you all are giving propranolol? My daughter takes it 3 times a day but I've heard some take it twice.
Forum: Help and Resources for Hemangiomas 12-06-2010, 03:25 AM
Replies: 12
Views: 13
Posted By RsMom
I'll keep both you and Kayleigh in my thoughts! ...

I'll keep both you and Kayleigh in my thoughts! What a beautiful little girl.
Forum: Help and Resources for Hemangiomas 11-24-2010, 06:46 AM
Replies: 13
Views: 14
Posted By RsMom
My daughter has been on propranolol for about 4...

My daughter has been on propranolol for about 4 months. I was very nervous and felt the same way when I started. I have just been very diligent with following what the doctors told us and making...
Forum: Help and Resources for Hemangiomas 10-20-2010, 02:47 PM
Replies: 8
Views: 9
Posted By RsMom
My doctor also advised us to watch for extreme...

My doctor also advised us to watch for extreme sleepiness. This would mean your baby wasn't just sleepy but very diificult to wake up, extremely lethargic, etc. She also said to feed her one hour...
Forum: Help and Resources for Hemangiomas 10-07-2010, 06:05 PM
Replies: 46
Views: 47
Posted By RsMom
Cari - He may not need any surgery at all. His H...

Cari - He may not need any surgery at all. His H looks similar in size to my daughter's when we started propranolol. Hers is on the side of her nose and the dermatologist expected it to affect the...
Forum: Help and Resources for Hemangiomas 10-04-2010, 04:40 PM
Replies: 5
Views: 6
Posted By RsMom
Just curious - how much rebound are you seeing? ...

Just curious - how much rebound are you seeing? Is it returning back to the original size/color? How fast is it coming back?

I'm hoping my doctor wants to start weening my daughter soon but she is...
Forum: Help and Resources for Hemangiomas 10-04-2010, 01:41 AM
Replies: 9
Views: 10
Posted By RsMom
We started to see some results after a couple of...

We started to see some results after a couple of days but it wasn't drastic like some parents have seen. We increased my daughter's dose very gradually though. Now, she takes 1ml 3x/day & is about...
Forum: Help and Resources for Hemangiomas 09-30-2010, 05:24 PM
Replies: 46
Views: 47
Posted By RsMom
I generally don't mind people asking - I find...

I generally don't mind people asking - I find that usually, they really want to know. However, I did have a mom and two girls come up to my daugter and the little girl said, "eew whats wrong with...
Forum: Help and Resources for Hemangiomas 09-29-2010, 08:22 PM
Replies: 46
Views: 47
Posted By RsMom
She takes 1 ml 3 times a day. She weighs about...

She takes 1 ml 3 times a day. She weighs about 14-15 pounds. The dose is periodically adjusted according to her weight. It has been about a month since our last derm visit so it may go up a bit...
Forum: Help and Resources for Hemangiomas 09-29-2010, 05:55 AM
Replies: 46
Views: 47
Posted By RsMom
My daughter has the same hemangioma! I'll send...

My daughter has the same hemangioma! I'll send Missy some pictures to post. She started propranolol at 3 months and is now 5 1/2 months. The results have been incredible! We tried topicals with...
Forum: Help and Resources for Hemangiomas 07-16-2010, 07:58 AM
Replies: 4
Views: 5
Posted By RsMom
I just started my daughter on propranolol and we...

I just started my daughter on propranolol and we were told to wake her up for feedings every 3-4 hours too. She has always been a great sleeper and I am hoping this doesn't ruin her sleeping habits!...
Forum: Help and Resources for Hemangiomas 07-06-2010, 08:33 PM
Replies: 17
Views: 18
Posted By RsMom
I don't mind when people ask - it's actually kind...

I don't mind when people ask - it's actually kind of a relief because I know they are wondering. I'd rather they just ask rather than staring or thinking it is something worse or contagious or...
Forum: Help and Resources for Hemangiomas 06-24-2010, 10:54 PM
Replies: 10
Views: 11
Posted By RsMom
I'm sorry you're little boy is having such...

I'm sorry you're little boy is having such difficulty with the steroids! Are these oral steroids? I have a 10 week old baby girl and we are using topical steroids and timolol right now. She is a...
Forum: Help and Resources for Hemangiomas 06-24-2010, 10:50 PM
Replies: 11
Views: 12
Posted By RsMom
I'm glad you are all seeing such good results...

I'm glad you are all seeing such good results with propranolol! How lucky that we are having our babies now and have options for treatment rather than just waiting!

We are using topicals right...
Forum: Help and Resources for Hemangiomas 06-18-2010, 11:41 PM
Replies: 0
Views: 1
Posted By RsMom
Anyone try topical steroids

Hi,
Our daughter's dermatologist started us on a combo of topical clobetasol and timolol today. Each is applied twice a day. We're going to try it for 3 weeks before going back. Anyone have...
Forum: Help and Resources for Hemangiomas 06-18-2010, 11:35 PM
Replies: 24
Views: 25
Posted By RsMom
Today, I'm starting my daughter on both timolol...

Today, I'm starting my daughter on both timolol and clobetasol. We are alternating the two treatments (2x/day each). Hopefully it helps! Hers is about the size of a dime so we will see! If it...
Forum: Help and Resources for Hemangiomas 06-18-2010, 11:17 PM
Replies: 6
Views: 7
Posted By RsMom
Thanks for you input everyone. We saw the derm...

Thanks for you input everyone. We saw the derm again today. She gave us clobetasol and timolol to use for now. We go back in 3 weeks to decide if we'll start propranolol or not. She said we would...
Forum: Help and Resources for Hemangiomas 06-16-2010, 03:51 AM
Replies: 11
Views: 12
Posted By RsMom
MPerron - Thanks so much! When we went to the...

MPerron - Thanks so much! When we went to the dermatologist, I really wasn't expecting that they'd recommend treating it because at this time, it's not affecting her nostril or eye. However, now I...
Forum: Help and Resources for Hemangiomas 06-15-2010, 11:21 PM
Replies: 6
Views: 7
Posted By RsMom
Tests before starting Propranolol

For those of you who have used propranolol, what tests were done before starting? Did you baby stay in the hospital for monitoring of the first dose or was it given at home?
Forum: Help and Resources for Hemangiomas 06-15-2010, 11:20 PM
Replies: 11
Views: 12
Posted By RsMom
Thanks Missy!

Thanks Missy!
Forum: Help and Resources for Hemangiomas 06-15-2010, 09:37 PM
Replies: 9
Views: 388
Posted By RsMom
Kelly - what came of your son's H? Did you go...

Kelly - what came of your son's H? Did you go ahead with any treatment or wait and see?
Forum: Help and Resources for Hemangiomas 06-15-2010, 09:27 PM
Replies: 4
Views: 5
Posted By RsMom
Pookey - how did your daughter's treatment go? ...

Pookey - how did your daughter's treatment go? I'm thinking of starting my baby girl on propranolol but am really nervous. Her H is about the same size as your daughter's in the picture.
Showing results 1 to 25 of 26

 
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