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Search: Posts Made By: kelmel
Forum: Port Wine Stain Help and Resources 03-08-2014, 03:28 AM
Replies: 3
Views: 4
Posted By kelmel
Hello. I hope you have found the answers you...

Hello. I hope you have found the answers you needed by now. if not, here are a few more..

My son has gone under GA more than a dozen times and no side effects so far. The GA is necessary for the...
Forum: Port Wine Stain Help and Resources 03-08-2014, 03:16 AM
Replies: 2
Views: 3
Posted By kelmel
Hi Karin, I have not had to explain the...

Hi Karin,

I have not had to explain the reasoning behind the treatments to my son who receives them, but I have to his older brother, who is 6. I tell him we treat the birthmark to keep it from...
Forum: Port Wine Stain Help and Resources 12-31-2013, 09:24 PM
Replies: 5
Views: 6
Posted By kelmel
Hello! I'm a mom to PWS child, so I can't speak...

Hello! I'm a mom to PWS child, so I can't speak to shyness due to a birthmark. But I can tell you everyone feels shy at some point for some reason. Don't let it stop you from trying new things and...
Forum: Port Wine Stain Help and Resources 07-07-2013, 05:02 AM
Replies: 4
Views: 5
Posted By kelmel
Hi Mary. My son has a PWS that cover most of the...

Hi Mary. My son has a PWS that cover most of the middle and lower part of his face. The V2 and V3 regions. However, it also extends partially over his eyelid and to a small portion of his...
Forum: Port Wine Stain Help and Resources 01-20-2013, 02:50 PM
Replies: 2
Views: 3
Posted By kelmel
Have you tried Dermablend? You can layer...

Have you tried Dermablend? You can layer Aquaphor under it to help with it blending on to dry skin. This line has a few different products depending on how much coverage you want. The thickest...
Forum: Port Wine Stain Help and Resources 01-20-2013, 06:43 AM
Replies: 2
Views: 3
Posted By kelmel
I'm so sorry you are experincing this much...

I'm so sorry you are experincing this much criticism. I have only had a handful of snide remarks and usually from people not very close to us. How hurtful to not have your family's support.

You are...
Forum: Port Wine Stain Help and Resources 01-20-2013, 06:27 AM
Replies: 18
Views: 19
Posted By kelmel
Give it at least a month. I remember crying two...

Give it at least a month. I remember crying two weeks after my son's first treatment for the same reason. The bruising faded and he was still red. It really did take almost a month after each...
Forum: Port Wine Stain Help and Resources 01-18-2013, 03:55 AM
Replies: 4
Views: 5
Posted By kelmel
Thank you. I'm sure your post will help others...

Thank you. I'm sure your post will help others with birthmarks and parents who are hoping to raise kids with a positive outlook, like yours.
Forum: Port Wine Stain Help and Resources 01-16-2013, 01:18 AM
Replies: 0
Views: 1
Posted By kelmel
Good article regarding PWS treatment options

This article has a very good overview of current port wine stain treatment options and new treatments on the horizon. Hope it helps answer some...
Forum: Port Wine Stain Help and Resources 01-07-2013, 04:55 AM
Replies: 3
Views: 4
Posted By kelmel
Thank you. Reading your post, I felt as though...

Thank you. Reading your post, I felt as though you know my own feelings.*

My son is nearly 3 and I also keep coming full circle in my thoughts and emotions. Do I wish this had not happened? Or maybe...
Forum: Port Wine Stain Help and Resources 11-30-2012, 05:07 AM
Replies: 5
Views: 6
Posted By kelmel
Hi mikerd, Thank you for sharing. I do not have...

Hi mikerd,

Thank you for sharing. I do not have personal experience with PWS on the body or limbs, however my son has had multiple treatments for his facial PWS.*

Sounds like you have asked all the...
Forum: Port Wine Stain Help and Resources 11-17-2012, 03:33 AM
Replies: 4
Views: 5
Posted By kelmel
It will wear away on its own. I admit it is a...

It will wear away on its own. I admit it is a strange feeling, but it really does help with post laser dryness. If you can still feel the first layer, there is probably no need to apply the second...
Forum: Port Wine Stain Help and Resources 11-15-2012, 03:53 AM
Replies: 4
Views: 5
Posted By kelmel
It is not intended to be removed. Aquaphor acts...

It is not intended to be removed. Aquaphor acts as a moisterizing barrier to protect the skin. It is heavy and may feel weird, at first, however it works.

Hope this helps.
Forum: Port Wine Stain Help and Resources 09-21-2012, 08:44 PM
Replies: 2
Views: 3
Posted By kelmel
Hello. Depending on how self-conscious your...

Hello. Depending on how self-conscious your daughter is about her appearance, you may want to prepare her for the appearance of the treated area immediately after the procedure. She may have very...
Forum: Port Wine Stain Help and Resources 08-13-2012, 09:13 PM
Replies: 1
Views: 2
Posted By kelmel
Hi Jessica, My son has a PWS on his face as well...

Hi Jessica,

My son has a PWS on his face as well and has had treatment with the VBeam. My understanding is that the grey spots appear when the laser settings are more intense. These spots seem to be...
Forum: Port Wine Stain Help and Resources 04-21-2012, 05:48 AM
Replies: 10
Views: 11
Posted By kelmel
Hi Lilly, My son started treatments as an...

Hi Lilly,

My son started treatments as an infant. Our doctor typically schedules the youngest children early in the morning, giving them most of the day to recover. By the next morning, aside from...
Forum: Port Wine Stain Help and Resources 04-14-2012, 05:21 AM
Replies: 5
Views: 6
Posted By kelmel
I know this thread is a little old, but I wanted...

I know this thread is a little old, but I wanted to comment anyway. I found it while Googling PWS and light sensitivity because my two year old with PWS is extremely sensitive to light and I thought...
Forum: Port Wine Stain Help and Resources 02-10-2012, 09:43 PM
Replies: 11
Views: 12
Posted By kelmel
Hi Aaron's Mom, My son has only just turned two,...

Hi Aaron's Mom,

My son has only just turned two, so I am not able to give you any reassurance as far long term cognitive impairment. But I did want to share that so far, he is progressing within...
Forum: Port Wine Stain Help and Resources 08-13-2011, 07:34 AM
Replies: 11
Views: 12
Posted By kelmel
I have also cried over the pain and...

I have also cried over the pain and unpleasantness of what the treatments seem to inflict on my son. I felt much better after talking with and reading what people who have had the treatment feel....
Forum: Port Wine Stain Help and Resources 08-13-2011, 07:18 AM
Replies: 6
Views: 7
Posted By kelmel
Hello! I am sorry for just now responding. I...

Hello!

I am sorry for just now responding. I hope all went well with the procedure. I have usually kept my son out of the sun for about 4 days post surgery. After that, we do go out, but with lots...
Forum: Port Wine Stain Help and Resources 05-10-2011, 11:13 PM
Replies: 6
Views: 7
Posted By kelmel
Hello. My son is 15 months and going in for his...

Hello. My son is 15 months and going in for his next surgery on Friday. After his past surgeries, he shows little signs of discomfort. He does wake from the anesthesia cranky sometimes, but that...
Forum: Port Wine Stain Help and Resources 05-01-2011, 06:22 AM
Replies: 3
Views: 4
Posted By kelmel
Sunscreen Recomendation

This thread is a little old, but I wanted to share this with you in case you are still searching for a sunscreen. On my son, we have two that we use. Either Waterbabies for Sensitive Skin or...
Forum: Port Wine Stain Help and Resources 05-01-2011, 06:14 AM
Replies: 5
Views: 6
Posted By kelmel
My son has extreme eczema with his PWS. His poor...

My son has extreme eczema with his PWS. His poor skin will crack without daily treatment. Our dermatologist has recommended a two step treatment for him. Cetaphil Restaderm is an over the counter...
Forum: Port Wine Stain Help and Resources 05-01-2011, 06:05 AM
Replies: 14
Views: 15
Posted By kelmel
My son has a PWS covering most of the left side...

My son has a PWS covering most of the left side of his face, into his scalp, and along his right jawline. His first treatment was at 7 weeks without general anthesia. It was not pleasant, but he...
Forum: Port Wine Stain Help and Resources 10-14-2010, 05:05 PM
Replies: 62
Views: 6,101
Posted By kelmel
My son's covers most of the left side of his face...

My son's covers most of the left side of his face extending along his jawline onto the right side of his face as well.

Very interesting how many left responses there have been.
Showing results 1 to 25 of 26

 
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