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Search: Posts Made By: momofAddie
Forum: Port Wine Stain Help and Resources 06-29-2008, 03:20 PM
Replies: 10
Views: 2,446
Posted By momofAddie
Hi. My daughter has received six treatments, all...

Hi. My daughter has received six treatments, all under general anesthesia. Her first was at 4 months of age. I am a sedation nurse at a pediatric cancer hospital. We have some patients that receive...
Forum: Port Wine Stain Help and Resources 06-15-2008, 02:52 PM
Replies: 6
Views: 1,283
Posted By momofAddie
I am glad it went so well. I am really excited to...

I am glad it went so well. I am really excited to see the results! Email me the Pics to my personal email. I'll send you an email requesting in case you do not still have it. Thanks,Kim
Forum: Port Wine Stain Help and Resources 06-10-2008, 01:10 AM
Replies: 2
Views: 957
Posted By momofAddie
financial help

Missy,
Thank you so much for the information. I really appreciate it. I'm glad there are some things out there.
Kim
Forum: Port Wine Stain Help and Resources 06-08-2008, 02:41 AM
Replies: 2
Views: 957
Posted By momofAddie
Help financially with travel

I was just wondering if there is any organization out there that helps families like us with travel expenses? We may be traveling to California in a few months and with all the medical expenses we...
Forum: Port Wine Stain Help and Resources 06-05-2008, 03:32 AM
Replies: 5
Views: 1,343
Posted By momofAddie
Johnathan, My daughter is on her 6th treatment....

Johnathan,
My daughter is on her 6th treatment. She has a right sided facial PWS that extends below the right eyelid to the bottom of he lip. The stain goes above her top lip to the midline of her...
Forum: Port Wine Stain Help and Resources 06-05-2008, 03:23 AM
Replies: 5
Views: 1,330
Posted By momofAddie
Information

Thanks to everyone for your support! I broke down today and called Addie's doctor's nurse. She was very reassuring to me. She said that while the spots are purple, we should really minimize the sun...
Forum: Port Wine Stain Help and Resources 06-02-2008, 02:03 AM
Replies: 5
Views: 1,330
Posted By momofAddie
Sun exposure after laser treatment

My daughter just had her 6th treatment by PDL on her right facial PWS. I should be a pro by now, but cannot remember the recommendations for sun exposure after treatment. I remember my doctor saying...
Forum: Port Wine Stain Help and Resources 05-26-2008, 09:32 PM
Replies: 6
Views: 1,283
Posted By momofAddie
Thanks

Great. Thanks. Let me know how the visit with Dr. Nelson goes. My daughter is having treatment on Thursday. I will see how that goes, although I feel as though we will not get any result on her lip....
Forum: Port Wine Stain Help and Resources 05-21-2008, 11:22 PM
Replies: 6
Views: 1,283
Posted By momofAddie
Question Need Advice-Next step?

Hello. It has been awhile since I have posted. My daughter, Addie, is now 18 months old and is scheduled to have her 6th laser treatment next week. She has a right sided facial PWS. We have had...
Forum: Port Wine Stain Help and Resources 07-03-2007, 07:13 PM
Replies: 9
Views: 2,098
Posted By momofAddie
still having eczema probs

Just wondering...did you have the name of the herbal remedy and/or herbalists?

thanks
Forum: Port Wine Stain Help and Resources 07-03-2007, 05:23 PM
Replies: 3
Views: 1,220
Posted By momofAddie
Laser treatment and scarring

My daughter is 7 months old and had her 2nd laser treatment on her right facial PWS 2 weeks ago. I am noticing two suspicious spots around her lip. The area looks a lot different than last time as...
Forum: Port Wine Stain Help and Resources 05-16-2007, 05:48 PM
Replies: 15
Views: 3,338
Posted By momofAddie
PWS and gums

I took my daughter to get checked out by the pediatric dentist. He stated there was no PWS on the gum area, but we would just watch and wait. I hate all of this watch and wait stuff.... I wish...
Forum: Port Wine Stain Help and Resources 05-07-2007, 01:05 AM
Replies: 9
Views: 2,098
Posted By momofAddie
You know, I need to get her to explain. She just...

You know, I need to get her to explain. She just said some children with PWS on their face also have eczema. I didn't asked if it was related or not (ie an icreased incidence in patients with PWS). I...
Forum: Port Wine Stain Help and Resources 05-06-2007, 10:57 PM
Replies: 9
Views: 2,098
Posted By momofAddie
Eczema with PWS

My daughter has some patches of eczema on her face, including on her PWS. My doctor says this is somewhat common. Has anybody else experienced this? Does it improve with time? What did/do you do for...
Forum: Port Wine Stain Help and Resources 05-06-2007, 03:03 AM
Replies: 19
Views: 3,159
Posted By momofAddie
Anesthesia for laser therapy

When Addie had her laser therapy, I asked A LOT of questions concerning her anesthesia. She is treated at Arkansas Children's Hospital. She received general anesthesia with a mask. They gave her...
Forum: Port Wine Stain Help and Resources 05-05-2007, 11:48 PM
Replies: 19
Views: 3,159
Posted By momofAddie
Ah hah! Now I've got the V2 answer. Sorry, my...

Ah hah! Now I've got the V2 answer. Sorry, my brain didn't work there for a second. Does anyone know about the rating though?

thanks,
kim
Forum: Port Wine Stain Help and Resources 05-05-2007, 11:44 PM
Replies: 19
Views: 3,159
Posted By momofAddie
Hello. I'm encouraged by the comments. My...

Hello. I'm encouraged by the comments. My daughter is 5 months old and had her first treatment under general anesthesia 1 month ago. I have lots of pictures (ie. pre and post first treatment) if you...
Forum: Port Wine Stain Help and Resources 04-30-2007, 08:57 PM
Replies: 10
Views: 1,958
Posted By momofAddie
Good Luck! Kim:)

Good Luck!


Kim:)
Forum: Port Wine Stain Help and Resources 04-28-2007, 01:13 PM
Replies: 10
Views: 1,958
Posted By momofAddie
Congratulations on your new addition to your...

Congratulations on your new addition to your family!My daugter is 5 months old with a PWS on her face. The advice I can offer you is to let your daughter deal with this at her own pace. Just be there...
Forum: Port Wine Stain Help and Resources 04-22-2007, 06:59 PM
Replies: 15
Views: 3,002
Posted By momofAddie
Thanks for your support. I'm still fighting! :)...

Thanks for your support. I'm still fighting!


:) momofaddie
Forum: Port Wine Stain Help and Resources 04-20-2007, 04:22 PM
Replies: 15
Views: 3,002
Posted By momofAddie
Update. I met with my benefits director at my...

Update. I met with my benefits director at my company. She states that we fall in a "gap" in our plan. No exceptions will be made. The out of network rate is to assist those that choose to go out of...
Forum: Port Wine Stain Help and Resources 04-19-2007, 08:42 PM
Replies: 12
Views: 2,192
Posted By momofAddie
Physician in Florida

Have you gone to http://www.birthmark.org/physicians_list.php, yet? Follow the directions and it will direct you to a physician. Hope you get some help. We were very blessed that our pediatrician...
Forum: Port Wine Stain Help and Resources 04-19-2007, 12:11 AM
Replies: 2
Views: 968
Posted By momofAddie
Insurance appeals

All insurances are different..that's the first problem. I can tell you what I did with mine. I live in Tennessee and have Principal Financial insurance through my job. My child's doctor and her staff...
Forum: Port Wine Stain Help and Resources 04-18-2007, 11:29 PM
Replies: 15
Views: 3,002
Posted By momofAddie
on this website? what website do I go to? thanks!

on this website? what website do I go to? thanks!
Forum: Port Wine Stain Help and Resources 04-16-2007, 03:25 PM
Replies: 12
Views: 2,192
Posted By momofAddie
I am new at this being my child is just 4 months...

I am new at this being my child is just 4 months old. Her PWS is on her face, but I am assuming what I was told would be applicable to all PWS. It is my understanding that some PWS are slow growing...
Showing results 1 to 25 of 28

 
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