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Search: Posts Made By: swsc
Forum: Living with a birthmark - my story 03-09-2012, 01:41 PM
Replies: 3
Views: 4
Posted By swsc
chuli - My name is Glenda and I'm a member of the...

chuli - My name is Glenda and I'm a member of the VBF and the Sturge-Weber Syndrome Community chapter. I have a grandson with SWS. I will try to email you through this board, but you can contact me...
Forum: Port Wine Stain Help and Resources 06-01-2010, 07:30 PM
Replies: 4
Views: 5
Posted By swsc
Hi Thuhuyen. I'm sorry you are having some...

Hi Thuhuyen. I'm sorry you are having some problems with your laser treatments. My 16 year-old grandson has facial pws. I can tell you what works for him. The best tip is to keep your skin from...
Forum: Port Wine Stain Help and Resources 07-27-2009, 05:16 PM
Replies: 3
Views: 652
Posted By swsc
Hi. I believe the Perfecta is the VBeam laser...

Hi. I believe the Perfecta is the VBeam laser made by Candela. Did you have treatment done at U of L or at UK Med Center in Lexington? They have the most up to date equipment in the state. They use...
Forum: Help and Resources for Hemangiomas 04-08-2009, 01:41 PM
Replies: 3
Views: 563
Posted By swsc
On this page is a picture of Saige and her mom at...

On this page is a picture of Saige and her mom at the Gala in New York this past November (scroll down to see pictures after the article):
http://www.birthmark.org/08gala.php
Forum: Help and Resources for Hemangiomas 04-07-2009, 10:44 PM
Replies: 3
Views: 563
Posted By swsc
Jessica: Another foundation/group uses burgundy...

Jessica:

Another foundation/group uses burgundy bracelets for their awareness campaign (Well - really, I know at least 3 groups that use the burgundy birthmark bracelets).

But since the VBF logo...
Forum: Announcements 04-06-2009, 05:28 PM
Replies: 0
Views: 848
Posted By swsc
2009 VBF Day of Awareness May 15

VBF 2009 International Day of Awareness ~ May 15

Explore the VBF Day of Awareness website and join in the fun. Tell Your Story about how VBF and vascular birthmarks have impacted your life.

Visit...
Forum: CMTC 04-06-2009, 04:47 PM
Replies: 9
Views: 2,466
Posted By swsc
Meet Ashley - VBF's CMTC Parent Rep.

Meet Ashley and her son Gavin.
Ashley is the new VBF parent representative for Cutis Marmorata Telangiectatica Congenita (CMTC). Read "Gavin's Story" to learn more about CMTC and a mother's search...
Forum: Port Wine Stain Help and Resources 04-06-2009, 04:41 PM
Replies: 2
Views: 674
Posted By swsc
Hi. My grandson sees Dr. Henry Vasconez at UK Med...

Hi. My grandson sees Dr. Henry Vasconez at UK Med Center in Lexington, and I would highly recommend him.

Have you tried the University of Louisville Hospital's plastic surgery department?

Please...
Forum: Port Wine Stain Help and Resources 06-22-2008, 07:47 PM
Replies: 0
Views: 737
Posted By swsc
Register Now For VBF 2008 Conference And Gala

REGISTER NOW FOR VBF 2008 CONFERENCE AND GALA
Sturge-Weber Syndrome Community Friends - Register early for the 2008 VBF Conference and Mark of Beauty Gala in New York City. There are a limited...
Forum: Living with a birthmark - my story 03-05-2008, 01:38 PM
Replies: 17
Views: 4,044
Posted By swsc
Shai: I sent you an email, so please let me know...

Shai:

I sent you an email, so please let me know if you received it.

Again, thank you so much for sharing you story!

Glenda, VBF Chapter Director
Forum: Announcements 03-04-2008, 04:38 PM
Replies: 0
Views: 2,495
Posted By swsc
VBF 2008 International Day of Awareness

VBF 2008 International Day of Awareness
May 15
Same Day – New Look

Look what’s new, VBF 2008 International Day of Awareness! We are excited to launch our international campaign for awareness on May...
Forum: Port Wine Stain Help and Resources 10-13-2007, 07:09 PM
Replies: 13
Views: 2,363
Posted By swsc
Laura: Email me at swsc @ swscommunity .org ...

Laura:

Email me at
swsc @ swscommunity .org (no spaces)
and I will give you the contact information for my friend in Metaire.

I tried to email you, but received a notice that you aren't...
Forum: Port Wine Stain Help and Resources 10-11-2007, 02:26 PM
Replies: 13
Views: 2,363
Posted By swsc
Melissa: The VBF has a Chapter in Australia, and...

Melissa:

The VBF has a Chapter in Australia, and you might want to contact the Chapter Rep., Eloisa Evangelista. She might have some information that would be helpful to you and your son.

Also, VBF...
Forum: Port Wine Stain Help and Resources 10-11-2007, 02:10 PM
Replies: 13
Views: 2,363
Posted By swsc
Hi Laura. Let me add my congratulations on the...

Hi Laura. Let me add my congratulations on the birth of your daughter. I have a grandson with facial pws. If you ever want to talk, just let me know.

Also I have a friend with pws/sws who lives in...
Forum: Announcements 10-11-2007, 02:02 PM
Replies: 0
Views: 2,012
Posted By swsc
VBF Australia - First Annual Awareness Ball

First Annual Australian Vascular Birthmark Foundation Fundraiser/Awareness Ball
Hosted by VBF Australia Chapter Representative, Eloisa Evangelista

Saturday 13th October 2007 (6pm-12am)
Leonda by the...
Forum: Port Wine Stain Help and Resources 10-05-2007, 04:38 PM
Replies: 13
Views: 1,952
Posted By swsc
The VBF has a Chapter in Australia. Perhaps they...

The VBF has a Chapter in Australia. Perhaps they can be of some help.

Here is the website link: http://vbfaustralia.org/index.php and here is the contact page link:...
Forum: Announcements 10-05-2007, 04:29 PM
Replies: 2
Views: 2,426
Posted By swsc
SWSC Reminder to All Our Friends - VBF Conference

VBF Conference

It's not too late to register for the VBF Conference in Irvine, CA, November 2-3.
*
Dr. Comi of the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute will be there to...
Forum: Port Wine Stain Help and Resources 05-21-2007, 09:19 PM
Replies: 7
Views: 1,243
Posted By swsc
Happy Birthday

Happy Birthday to Hank!
Forum: Port Wine Stain Help and Resources 05-20-2007, 06:35 PM
Replies: 0
Views: 878
Posted By swsc
SWSC Volunteer Rep. - Awareness Day Article

Kathy Wyrick was featured in her local newspaper. Thanks for supporting VBF Day of Awareness!

Read the article online here:
http://www.lakecityreporter.com/articles/2007/05/14/news/local/news02.txt
Forum: Announcements 04-18-2007, 09:44 PM
Replies: 1
Views: 2,352
Posted By swsc
VBF Awareness Day

The countdown has begun, but you still have time to plan your VBF Day of Awareness event. Our official day of celebration is May 15, but you can host an event at any time during the year. Don't...
Forum: Announcements 02-28-2007, 07:22 PM
Replies: 2
Views: 2,784
Posted By swsc
I also purchased flowers through flowerpetal.com....

I also purchased flowers through flowerpetal.com. They arrived within hours of my order, and were beautiful!

Glenda
Forum: Announcements 02-28-2007, 07:20 PM
Replies: 1
Views: 2,352
Posted By swsc
REGISTER NOW for 2007 VBF International Day of Awareness

THE CLOCK IS TICKING ON THE VBF INTERNATIONAL DAY OF AWARENESS ~ MAY 15, 2007
CHECK OUT THE VBF HOMEPAGE WWW.BIRTHMARK.ORG

VBF wants the world to know how hard our families and friends work to...
Forum: Port Wine Stain Help and Resources 12-31-2006, 11:08 PM
Replies: 0
Views: 1,007
Posted By swsc
OT - Happy New Year

Happy New Year to everyone!

Love,
Glenda
Forum: Port Wine Stain Help and Resources 12-19-2006, 01:01 AM
Replies: 0
Views: 972
Posted By swsc
On TV - Evan and Donna Ducker - Buddy Booby Authors

Evan and Donna Ducker, authors of Buddy Booby's Birthmark, will appear on the CBS Early Show with Hannah Storm tomorrow morning - 12/19 at 7:40 a.m. ET. Be sure to watch!
Forum: Announcements 12-18-2006, 11:40 PM
Replies: 0
Views: 2,168
Posted By swsc
On TV - Evan and Donna Ducker- Buddy Booby Authors

Evan and Donna Ducker, authors of Buddy Booby's Birthmark, will appear on the CBS Early Show with Hannah Storm tomorrow morning - 12/19 at 7:40 a.m. ET. Be sure to watch!
Showing results 1 to 25 of 95

 
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