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Search: Posts Made By: ebu
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-09-2008, 04:27 PM
Replies: 4
Views: 2,273
Posted By ebu
Hey there My son has lived with LM ind his mouth...

Hey there

My son has lived with LM ind his mouth and tongue since he was born...we have seen it grow and change - even though they said it probably would not do so.

We are quite sure thar his LM is...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-09-2008, 04:10 PM
Replies: 19
Views: 2,920
Posted By ebu
Hey Linda Thank you for your reply.. We are now...

Hey Linda

Thank you for your reply..

We are now taking action. My son just had a total break down, he can not handle the constant pain and the fact that he is tired all the time. We have chosen to...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 10-27-2008, 09:31 PM
Replies: 19
Views: 2,920
Posted By ebu
update from Denmark

We are still awaiting some response from the danish doctors. Sadly we are not allowed to try to get help abroad without paying the expenses ourselves. The danish Doctors have to try everything they...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 07-03-2008, 11:25 AM
Replies: 19
Views: 2,920
Posted By ebu
Hello Missy I will try to contact Dr. Tombris. I...

Hello Missy

I will try to contact Dr. Tombris.
I just hoped that there would be any other persons who knew symptoms like my sons.
They are allways looking at his tongue and mouth - even though he...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-22-2008, 12:02 PM
Replies: 19
Views: 2,920
Posted By ebu
Lymphatic Malformation - Denmark

Hello there

Since 1997, my son has been diagnosed with Lymphatic Malformation - especially Tongue, and mouth area. He has been through many surgeries during the last 20 yrs.

At the moment he is...
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