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Showing results 1 to 25 of 143
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Search: Posts Made By: KatieG
Forum: CMTC 07-05-2012, 12:59 AM
Replies: 1
Views: 2
Posted By KatieG
That is great news!

That is great news!
Forum: Port Wine Stain Help and Resources 07-04-2012, 03:42 AM
Replies: 13
Views: 14
Posted By KatieG
I think KT syndrome is only diagnosed through an...

I think KT syndrome is only diagnosed through an MRI I believe. I know when they suspected it in my daughter (and it has not been ruled out) that is what they said but we opted to wait as her leg...
Forum: Port Wine Stain Help and Resources 07-03-2012, 03:05 AM
Replies: 7
Views: 8
Posted By KatieG
My daughter has been diagnosed with a "port...

My daughter has been diagnosed with a "port wine like" marking on her leg. Nothing showed up until she was 8 weeks old and it progressively got worse until she was one. She sees one of the top...
Forum: Help and Resources for Hemangiomas 07-03-2012, 03:02 AM
Replies: 7
Views: 8
Posted By KatieG
He looks great! who did his surgery?

He looks great! who did his surgery?
Forum: Port Wine Stain Help and Resources 07-03-2012, 03:01 AM
Replies: 13
Views: 14
Posted By KatieG
My daughter has a port wine like stain on her...

My daughter has a port wine like stain on her left leg from the knee down. We see a birthmark specialist in NYC. Hers was not present at birth, rather started showing up around 2 months of age. If...
Forum: Help and Resources for Hemangiomas 06-09-2012, 02:24 AM
Replies: 3
Views: 4
Posted By KatieG
I don't, but I know Dr. Waner in NYC recommends...

I don't, but I know Dr. Waner in NYC recommends him also.
Forum: Port Wine Stain Help and Resources 05-01-2012, 04:21 PM
Replies: 6
Views: 7
Posted By KatieG
Thanks for sharing your story!

Thanks for sharing your story!
Forum: Port Wine Stain Help and Resources 04-21-2012, 03:13 PM
Replies: 10
Views: 11
Posted By KatieG
My daughter had treatments on her leg. She came...

My daughter had treatments on her leg. She came home and never was bothered by anything. There was never an open sore, her leg just looked discolored. Good luck!
Forum: Help and Resources for Hemangiomas 04-08-2012, 04:44 PM
Replies: 5
Views: 6
Posted By KatieG
good luck! For me the biggest shock was seeing...

good luck! For me the biggest shock was seeing my child after surgery. I was so used to her hemangioma being there you know? I lost it when I saw her come out of surgery LOL.

As for your son,...
Forum: Help and Resources for Hemangiomas 03-30-2012, 03:28 AM
Replies: 5
Views: 6
Posted By KatieG
I think you emailed me today, but if you didn't,...

I think you emailed me today, but if you didn't, yes I do think that is a deep H. My daughters was compound so it had some red speckles on top, but the part under the skin looked just like that.
Forum: Help and Resources for Hemangiomas 03-30-2012, 03:27 AM
Replies: 3
Views: 4
Posted By KatieG
Amazing! Thanks for posting!

Amazing! Thanks for posting!
Forum: Help and Resources for Hemangiomas 03-13-2012, 08:44 PM
Replies: 8
Views: 9
Posted By KatieG
First of all, take a deep breath. We have all...

First of all, take a deep breath. We have all been there and its so overwhelming.

If you don't want to wait and see, then don't. You can email a specialist or even go see one. If its near her...
Forum: Help and Resources for Hemangiomas 03-07-2012, 01:58 AM
Replies: 1
Views: 2
Posted By KatieG
Do you have pictures? I would worry about it...

Do you have pictures? I would worry about it pushing on the hemangioma as well.
Forum: Youth and Teen Support 02-27-2012, 10:08 PM
Replies: 8
Views: 9
Posted By KatieG
Do you have any pictures?

Do you have any pictures?
Forum: Port Wine Stain Help and Resources 02-25-2012, 10:08 PM
Replies: 10
Views: 11
Posted By KatieG
Our doc actually said that laser works better on...

Our doc actually said that laser works better on the body than on extremities. My daugther's is on her leg and after 2 laser treatments we have not seen much change.
Forum: Help and Resources for Hemangiomas 02-05-2012, 02:37 AM
Replies: 21
Views: 22
Posted By KatieG
Yes he needs to be seen ASAP by a specialist. I...

Yes he needs to be seen ASAP by a specialist. I think there is a Dr. in South Carolina possibly. Could you travel there?
Forum: Help and Resources for Hemangiomas 02-02-2012, 02:34 PM
Replies: 9
Views: 10
Posted By KatieG
My daughter had a compound Hemangioma in front...

My daughter had a compound Hemangioma in front of her soft spot on her head. We had it removed. Let me know if you want to see pics!
Forum: Help and Resources for Hemangiomas 02-02-2012, 02:32 PM
Replies: 3
Views: 4
Posted By KatieG
She looks great!

She looks great!
Forum: General Resources 01-29-2012, 02:37 PM
Replies: 3
Views: 4
Posted By KatieG
Can I ask if this was present at birth? or did...

Can I ask if this was present at birth? or did it show up after birth?

My daughter has VERY similar markings on her left leg in the same pattern as yours. I have been told it is not a port wine...
Forum: Port Wine Stain Help and Resources 12-03-2011, 10:24 PM
Replies: 7
Views: 8
Posted By KatieG
My daughter has a port wine stain/vascular mark...

My daughter has a port wine stain/vascular mark on her leg. It goes from the bottom of her foot up to her knee in a spotty pattern. She is currently on her 2nd laser treatment (at 19 months old). ...
Forum: Help and Resources for Hemangiomas 11-30-2011, 03:43 AM
Replies: 17
Views: 18
Posted By KatieG
Those look like hemangiomas to me. See what your...

Those look like hemangiomas to me. See what your doc says and don't be afraid to see a specialist. There are lots of things that can be done to prevent it from growing further. Good luck!
Forum: Help and Resources for Hemangiomas 11-22-2011, 02:52 AM
Replies: 8
Views: 9
Posted By KatieG
My daughter had hers removed at 4.5 months by Dr....

My daughter had hers removed at 4.5 months by Dr. Waner in NYC. I live in the NYC area. Let me know if I can help in any way. My daughter is now 19 months old and you can't even tell she ever had...
Forum: Help and Resources for Hemangiomas 11-18-2011, 06:29 PM
Replies: 8
Views: 9
Posted By KatieG
My daughter had a hemangioma on the top of her...

My daughter had a hemangioma on the top of her head and we had it removed so it would not interfere with her hair line. She did have some hair growing out of it at the time, but it was towards her...
Forum: Help and Resources for Hemangiomas 11-12-2011, 12:37 PM
Replies: 14
Views: 15
Posted By KatieG
My daughter has had surgery and laser treatment. ...

My daughter has had surgery and laser treatment. I actually found the laser surgery to be quite easy. I think she was only under for a total of 5 minutes and woke up happy as a clam! It wasn't as...
Forum: Help and Resources for Hemangiomas 10-31-2011, 06:16 PM
Replies: 9
Views: 10
Posted By KatieG
My daughter had a large deep hemangioma in front...

My daughter had a large deep hemangioma in front of her soft spot. It grew to the size of a golf ball and we ended up having it removed.

If you are concerned just ask for a referral to a...
Showing results 1 to 25 of 143

 
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