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Search: Posts Made By: Donovan
Forum: Adults Living with Birthmarks 03-24-2012, 05:33 PM
Replies: 6
Views: 7
Posted By Donovan
Hi Abatie, My daughter has an AVM and she has an...

Hi Abatie, My daughter has an AVM and she has an IUD (Mirena). It only contains progesterone as estrogen really affects vascular malformations. Since she started using it, she is not experiencing the...
Forum: AVM Help and Resources 12-31-2011, 02:14 PM
Replies: 2
Views: 3
Posted By Donovan
Hi Jenny, My daughter has an AVM and she has an...

Hi Jenny, My daughter has an AVM and she has an IUD (Mirena). It only contains progesterone as estrogen really affects vascular malformations. Since she started using it, she is not experiencing the...
Forum: Port Wine Stain Help and Resources 03-15-2011, 09:01 PM
Replies: 11
Views: 12
Posted By Donovan
Hi Ashlee, The pediatrician that we saw was Dr....

Hi Ashlee, The pediatrician that we saw was Dr. Galiwango. The only dermatologist that I've seen for one of my children is Dr. Toth. Have you thought about e-mailing your photos to any of the doctors...
Forum: Port Wine Stain Help and Resources 03-13-2011, 12:35 AM
Replies: 11
Views: 12
Posted By Donovan
Hi Ashlee, I also live in Windsor ( actually La...

Hi Ashlee, I also live in Windsor ( actually La Salle ). Our daughter has an arteriovenous malformation.Do you have a photo of your little girl? It is very frustrating to go to so many doctors and...
Forum: AVM Help and Resources 01-14-2011, 09:46 PM
Replies: 3
Views: 4
Posted By Donovan
Smile AVM doctors in Canada.

Our daughter has an AVM in her hand. She has seen many doctors and has visited several hospitals in Ontario, She has also been to Boston, and for the last few years has been treated by Dr. Josee...
Forum: Help and Resources for Hemangiomas 03-08-2010, 04:08 AM
Replies: 8
Views: 9
Posted By Donovan
Hi Eric, My daughter has an AVM in her hand. I...

Hi Eric,
My daughter has an AVM in her hand. I suspect that what you have looks similar. If you want to contact me , please let me know. I will try to send you photos.
Liz
Forum: Living with a birthmark - my story 06-09-2009, 01:34 PM
Replies: 3
Views: 781
Posted By Donovan
Please contact Lise Daoust . She has an AVM in...

Please contact Lise Daoust . She has an AVM in her lip and has had treatment for it. daoustl@sympatico.ca
She has a French website. It is http://www.anomalievasculaire.org/
Lise speaks English and...
Forum: AVM Help and Resources 04-19-2009, 04:28 AM
Replies: 5
Views: 1,801
Posted By Donovan
My daughter has an AVM in her hand. When she saw...

My daughter has an AVM in her hand. When she saw a specialist, she was told not to take any form of birth control as it could cause irreversible damage to her hand. She experiences more pain when she...
Forum: AVM Help and Resources 09-29-2008, 03:19 AM
Replies: 8
Views: 2,031
Posted By Donovan
My 18 year old daughter has an AVM of her hand....

My 18 year old daughter has an AVM of her hand. She was told never to take birth control pills as it would affect her. Hormones make it worse and that is why there is noticable growth during puberty....
Forum: AVM Help and Resources 02-28-2008, 04:24 AM
Replies: 8
Views: 2,012
Posted By Donovan
If I were to choose one doctor to see, it would...

If I were to choose one doctor to see, it would be Dr. Burrows.Her fee when she was in Boston was $500. When we saw her in Boston, our Dr. here asked if we had seen any one else. Since she would have...
Forum: AVM Help and Resources 02-25-2008, 07:00 PM
Replies: 8
Views: 2,012
Posted By Donovan
Dr. Burrows moved to New York last year to work...

Dr. Burrows moved to New York last year to work with Dr. Waner. Contact them both. Here is her e-mail :- PBurrows@CHPNET.org.
Forum: AVM Help and Resources 02-24-2008, 06:54 PM
Replies: 8
Views: 2,012
Posted By Donovan
Hi Tracy, I agree that you should contact Dr....

Hi Tracy,
I agree that you should contact Dr. Levitin as well as Dr. Burrows in New York. Our daughter has an AVM in her hand and was seen by Dr. Burrows.Unfortunately as we live in Canada, we could...
Forum: AVM Help and Resources 05-02-2007, 04:15 PM
Replies: 7
Views: 2,026
Posted By Donovan
Smile Hi David, There is another doctor in Montreal ,...

Hi David,
There is another doctor in Montreal , Dr. Jose Dubois who treats Vascular Malformations. She sees children from all over Canada. As far as treatment is concerned, obviously every case is...
Forum: AVM Help and Resources 04-16-2007, 09:24 PM
Replies: 7
Views: 2,026
Posted By Donovan
Hi David, Heather was diagnosed 9 years ago and...

Hi David,
Heather was diagnosed 9 years ago and as yet hasn't had any treatment. The AVM did grow a lot during puberty and she will probably have to start treatment soon, but there isn't a rush to...
Forum: AVM Help and Resources 04-16-2007, 05:58 PM
Replies: 7
Views: 2,026
Posted By Donovan
Why don't you e-mail Dr. Brothers? I posted a...

Why don't you e-mail Dr. Brothers? I posted a reply for you on one of your other posts that he had sent to me. I would not let a plastic surgeon touch my daughters AVM unless he had great...
Forum: AVM Help and Resources 04-16-2007, 11:07 AM
Replies: 7
Views: 2,026
Posted By Donovan
Hi Davden, Our daughter has an AVM of her hand....

Hi Davden,
Our daughter has an AVM of her hand. We have just come back from the NOVA conference in Cincinnati and the doctors there told us that if we fly, H should wear a compression garment. We...
Forum: AVM Help and Resources 09-12-2006, 08:04 PM
Replies: 11
Views: 5,463
Posted By Donovan
My daughter has an AVM in her hand. She was seen...

My daughter has an AVM in her hand. She was seen by Dr. Burrows who told her never to use hormones as they could do irreversable damage. I would consult a vascular expert . Pregnancy also exacerbates...
Forum: AVM Help and Resources 01-30-2006, 05:29 PM
Replies: 16
Views: 3,598
Posted By Donovan
Re: Pelvic AVMs?

Hi Sarah,
When I took my daughter to Boston, we stayed at the Best Western Boston Inn at Longwood. It was by far the best rate. I booked it by phone and the best thing to do is phone the Hotel...
Forum: AVM Help and Resources 01-19-2006, 11:02 PM
Replies: 16
Views: 3,598
Posted By Donovan
Re: Pelvic AVMs?

Hi Sarah,
I spoke to you a while ago about our daughters AVMs. Last October when we saw DR. Burrows, I asked her about the pill. She said that my daughter must never take hormones as it could do...
Forum: AVM Help and Resources 10-14-2005, 05:23 PM
Replies: 8
Views: 2,064
Posted By Donovan
Re: AVM treatment in Canada.

Thank you Corinne. I have e-mailed Lise and am awaiting her reply. I know that many Doctors use embolization and sclerotherapy but definitely do not have the expertise of treating these difficult and...
Forum: AVM Help and Resources 10-14-2005, 04:35 AM
Replies: 8
Views: 2,064
Posted By Donovan
AVM treatment in Canada.

We live in Ontario and were wondering if any fellow Canadians who have been treated for peripheral AVMs, could tell us where they received treatment. Has anyone heard of Dr.Martin E Simons? There are...
Forum: AVM Help and Resources 01-31-2005, 12:16 AM
Replies: 10
Views: 4,386
Posted By Donovan
Re: AVM of Right Foot

Hi,
My daughter has an AVM in her hand. It also involves bone. There are holes in the bones due to the blood vessels going through the bone. She has been seen in London, Ontario by 2 different...
Showing results 1 to 22 of 22

 
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