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Search: Posts Made By: blessedmom10
Forum: Help and Resources for Hemangiomas 12-15-2011, 01:02 AM
Replies: 1
Views: 2
Posted By blessedmom10
what embryonic stage do hemangiomas form?

Is it known when Hemangiomas are form if they are not there at birth? (found DS at 3 weeks old) Is everything already formed but just not seen at birth? Are they developing as whatever effected part...
Forum: Help and Resources for Hemangiomas 11-05-2011, 07:06 PM
Replies: 3
Views: 4
Posted By blessedmom10
My ds started Propranolol at 3 weeks and was in...

My ds started Propranolol at 3 weeks and was in the PICU b/c his H is in his airway. So he was on monitoring. I never saw a pause at his first visit or any after where monitoring was done. However...
Forum: Help and Resources for Hemangiomas 07-27-2011, 02:38 AM
Replies: 4
Views: 5
Posted By blessedmom10
I try to give my ds his propranolol at 10pm and...

I try to give my ds his propranolol at 10pm and 6am (and 2pm-every 8 hours) so I am not up at 3 in the morning. I just make sure he eats within an hour of the dose (either before and after). When...
Forum: Help and Resources for Hemangiomas 07-26-2011, 03:28 AM
Replies: 5
Views: 6
Posted By blessedmom10
I did call the doctor. Since my post ds is eating...

I did call the doctor. Since my post ds is eating less and has vomited once a day for two days. Doctor says give him half doses as long as he is eating some b/c he is use to his b/p being lower and...
Forum: Help and Resources for Hemangiomas 07-25-2011, 05:49 AM
Replies: 5
Views: 6
Posted By blessedmom10
Low blood sugar or low blood pressure, either way I didn't like it

FYI this is what happened to us: my 11 month old ds has not been eating as usual. He has refused a feeding here and there, but done fine with the others. He has some tummy issue and is on Elecare...
Forum: Help and Resources for Hemangiomas 07-06-2011, 03:44 AM
Replies: 3
Views: 4
Posted By blessedmom10
H inside mouth, do I need a dentist that knows about H's?

My ds is 11 months old and his first tooth is breaking through. He has the purple coloring of Hemangiomas inside his mouth (lower gums, under tongue and on bottom of tongue, and in partiod...
Forum: Help and Resources for Hemangiomas 06-02-2011, 01:21 AM
Replies: 5
Views: 6
Posted By blessedmom10
Well, he is still having a cough that is a little...

Well, he is still having a cough that is a little croupy esp at night, however it is not any worse. He is still having trouble sleeping, but that has been a problem for 8-9 months! Not sure if GI...
Forum: Help and Resources for Hemangiomas 05-27-2011, 05:25 AM
Replies: 5
Views: 6
Posted By blessedmom10
Ulcers on inner lip went away after 2 days. ...

Ulcers on inner lip went away after 2 days. Doesn't look like an ulcerated H. Thank God. So hard to not panic at those sort of things. Would not have thought twice if ds didn't have the...
Forum: Help and Resources for Hemangiomas 05-27-2011, 03:57 AM
Replies: 5
Views: 6
Posted By blessedmom10
Oh thanks so much for responding. I did go to...

Oh thanks so much for responding. I did go to the dr, actually yesterday b/c he is not sleeping worse than usual, so I wanted to make sure all was ok. No ear infection, lungs were clear etc. So I...
Forum: Help and Resources for Hemangiomas 05-26-2011, 10:34 PM
Replies: 3
Views: 4
Posted By blessedmom10
Sorry I didn't know how old you dd is now. But my...

Sorry I didn't know how old you dd is now. But my ds is 9 months. I give his in a syringe just the medicine. It is flavored banana (since it has to be compounded-so they just add it then). I just...
Forum: Help and Resources for Hemangiomas 05-26-2011, 10:26 PM
Replies: 5
Views: 6
Posted By blessedmom10
subglottic H-croupy breathing again

My son is 9months and 28 days old. He was dx with a subglottic hemangioma (also in mouth-lip/gums/tongue and parotid gland) at 4 wks old after croupy sounding cough/cry and discoloration on his lip...
Forum: Help and Resources for Hemangiomas 05-13-2011, 05:50 PM
Replies: 5
Views: 6
Posted By blessedmom10
My son is 9 months old. I am not sure if this is...

My son is 9 months old. I am not sure if this is some of the hand foot and mouth or his H. Hand foot and mouth was 2 weeks ago, so I don't know. I hope that is all it is, he already has a scar on...
Forum: Help and Resources for Hemangiomas 05-13-2011, 04:12 PM
Replies: 5
Views: 6
Posted By blessedmom10
ulcerated H @9months old?? Help-do I need treatment now?

My ds was dx with H in his airway, lip(inside and out), tongue and parotid gland at 4 weeks old. He has been doing well on his Propranolol. He was recently dx with hand foot and mouth (fever, sores...
Forum: Help and Resources for Hemangiomas 02-22-2011, 05:25 PM
Replies: 15
Views: 16
Posted By blessedmom10
May I ask about her PHACES dx. what testing did...

May I ask about her PHACES dx. what testing did they do? Is she showing any other signs with her croupy sounds and facial H's. Your grand-daughter sounds just like my son, but when I ask about...
Forum: Help and Resources for Hemangiomas 02-22-2011, 05:18 PM
Replies: 15
Views: 16
Posted By blessedmom10
Oh so glad to hear things are going well now. I...

Oh so glad to hear things are going well now. I have not been able to find many others with subglottic H, so if you ever have any questions or just want to stay in touch, my email is...
Forum: Help and Resources for Hemangiomas 02-05-2011, 04:21 AM
Replies: 15
Views: 16
Posted By blessedmom10
Hello, my now 6 month old son was dx at 2 weeks...

Hello, my now 6 month old son was dx at 2 weeks old with Hemangiomas on his tongue, front of his neck, lower inner lip (at gum line) and lower lip. At 4 weeks also confirmed subglottic airway H and...
Forum: Help and Resources for Hemangiomas 01-08-2011, 11:45 AM
Replies: 30
Views: 31
Posted By blessedmom10
I have seen a pedi gi with my dd, but not with my...

I have seen a pedi gi with my dd, but not with my ds. My pedi has started him on the prevacid and it helped. He is eating better and less green poop, but now he doesn't sleep. Up about every 1-2...
Forum: Help and Resources for Hemangiomas 01-07-2011, 04:34 PM
Replies: 30
Views: 31
Posted By blessedmom10
We are dairy free also with my 3 yr old. It's...

We are dairy free also with my 3 yr old. It's been hard but I have learn how to cope better. ALWAYS looking for resources for food. Cant imagine paying for formula at that price. I breastfeed and...
Forum: Help and Resources for Hemangiomas 01-07-2011, 03:54 PM
Replies: 1
Views: 2
Posted By blessedmom10
Propananol-have any sleep issue with your child?

My 5 month old has been on Propananol since he was 1 month old. He use to sleep 4-5 hours in a row. over the last 4-6 weeks has only sleeps 1-2 hours in a row without intervention and is restless...
Forum: Help and Resources for Hemangiomas 01-07-2011, 03:34 PM
Replies: 10
Views: 11
Posted By blessedmom10
Thanks for reply

thanks for sharing your story. I am going to ask to stay on this dose awhile longer, I think his lip is growing a little, se doc next week.

Blessed Mom 10
Forum: Help and Resources for Hemangiomas 12-27-2010, 04:09 AM
Replies: 10
Views: 11
Posted By blessedmom10
Airway H-is it too early to wean? Anyone else out there with internal H?

My 4 mo old son was dx at 2 weeks with Hemangioma on his tongue, front of his neck, lower inner lip (at gum line) and lower lip. At 4 weeks also confirmed subglottic airway H and parotid gland H...
Forum: Help and Resources for Hemangiomas 09-23-2010, 09:06 PM
Replies: 7
Views: 8
Posted By blessedmom10
Thanks so much for sharing your story. I am...

Thanks so much for sharing your story. I am still in a little shock of it all. We see our ENT, Dr Burns and regular pedi all next week. Hope to get a plan in place. I just wonder what our lives...
Forum: Help and Resources for Hemangiomas 09-21-2010, 11:36 PM
Replies: 7
Views: 8
Posted By blessedmom10
Airway Subglottic Hemangioma

Hello, I am new here. We have been dx with a subglottic hemangioma. My son is currently 6 wks old. He was dx at 3 weeks after a bronchoscopy. We are taking Propranolol and just weaned off...
Showing results 1 to 23 of 23

 
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