Re: Life with a PWS - by Jane
I loved your story! I am 31, female, and have a rather large PWS on my chin and neck/cheek. Not only is it large, it's also dark purple/red. It gets worse. I teach children in 4-7th grade. I get all the comments, questions, and remarks just like you. And just like you, I can get moody about it. I am not always polite about answering questions either, espcially if I think it's rude. I don't like idiot/rude children and I hope their parents teach them better.
I've learned to appreciate it. Mine is actually beginning to slowly raise off my skin so I'm worried it might become cancerous.