Hi incognito75. It's wonderful to see more adults with pws posting and sharing their experiences.
I noticed in another post you asked about scholarships or financial aid. If this is concerning actual laser treatment, I don't know of any groups that pay for treatment, only transportation or lodging. You might check with Dr. Hochman's foundation, The Hemangioma Treatment Foundation. http://www.hemangiomatreatment.org
You also mentioned the fear of the pws turning cancerous, and that you had read this somewhere. Do you remember where you read this? Any information you could provide would be most appreciated. I'm not an expert, but as far as I know, this isn't a typical concern with pws.
My grandson has pws/SWS, and will be 12 years old in May.