Vascular Birthmarks Foundation Forum - View Single Post - Hello, here's my story.
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Old 10-10-2006, 12:53 AM
jeri-lee
 
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Default Hello, here's my story.

Hi there, My name is Jeri-Lee. I live in Calgary,AB and am 28 years old. When i was 15 a lump began to grow on my lower back, sacral area to the left of my spine. It grew, and became inflamed periodically and was slowing me from riding my horse, and lifting heavier objects and many other physical activites. I started seeing a doctor and they immediately told me it was just a Lipoma, which is a benign fatty cyst/tumor. They told me many times that it's not painful, but after several visits to the doctor explaining the pain i was in they sent me to a surgeon to have it removed. Within a year it had come back and i have been seeing doctors for years and no one ever sent me in for an MRI or Ultra sound until a year and a half ago.

No one has seemed to be able to give me a straight answer, until a recent surgeon told me that he does not believe this to be a lipoma, but a Venous Malformation. Which i had never heard of.

I"m going for my third MRI on Jan 3/07, and am hoping they can give me any more information. I"ve been told that if it is infact a venous malformation, surgery will never help it, it will always be there. I don't accecpt this answer and am going to see if i can see another surgeon and get a second opinion as well as visit a naturopathic doctor.

I have extreme emotional attachment to the pain involved with this problem in my back. Being so young, and in so much pain at times is really unfair, and i really hope that this is not going to be with me for the rest of my life.

If anyone has any information on internal venous malformations related to lower back and sacral areas or links to share it would be much appreciated.
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