Vascular Birthmarks Foundation Forum - View Single Post - 5 week old has Hemangioma in Liver HELP!!
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Old 09-12-2003, 02:57 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re:5 week old has Hemangioma in Liver HELP!!

My heart is breaking for you. I remember so well the fear three months ago (when our son was your son's age). We do not have experience with internal H. But, our son has a large h. on his face and neck and behind and in the ear,

This is a great website and hopefully someone will have more infor. for you. The good news is that you know early on what your baby has...and the right tests and doctors to help you go forward with the best treatment. People here are really good resources for Doctors too.

Also, you might want to ck out the website link below. it is a great support group. There are parents on both sites with experiences like yours and positive outcomes to give you hope. Babies are amazing...they often handle things better than adults.



http://groups.msn.com/vascularbirthm..._whatsnew.msnw

My son's picture (Nicholas) is posted on the site above also...he has come a long ways.

Corinne
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Corinne Barinaga
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