Vascular Birthmarks Foundation Forum - View Single Post - Looking for lymphangioma or hemangiolymphangioma specialists and treatment
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Old 09-05-2007, 04:54 PM
aly2007 aly2007 is offline
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Join Date: Sep 2007
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Hello, Jeanette!

My name is Amy and I am 23. I have congenital lymphangiom and hemangioma on my tongue. I have the combination of the two. My parents took me to a specialist in Houston, Texas. His name is Dr. Kevin Pireria. He deals with pediatrics of oncology and hematology. Mine is on my tongue, but it was spreading to the floor of my mouth, and that is when I had to have surgery. I was 18 when I started having the complications. If you would like to talk about the condition or talk about what it feels like to her I would be happy to help. I've never met anyone with the same thing. It would be great to be able to help out a family. My parents had to read and learn with first hand experience. You may contact me at amylyager@gmail.com
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