well here I am -- saw the thread here 3 mths later!! sorry !!
welcome to the list here!
guess what !! Your PWS looks very similar to my daughters! yes it does ! Addie's PWS is left side, down complete torso to her toes and even bottom of her foot ! She is 18 and has lived a full life so far even being a National All Star cheerleader!!
Write me soon and I will answer more questions for you!!!
( PS I marked this thread so I will get a notice of your reply !! I hope this works right -- _