Vascular Birthmarks Foundation Forum - View Single Post - Looking for lymphangioma or hemangiolymphangioma specialists and treatment
Thread: Looking for lymphangioma or hemangiolymphangioma specialists and treatment
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Old 09-28-2007, 09:26 PM
cyndy57 cyndy57 is offline
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Join Date: Sep 2007
Location: limousin in france
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hi jeanette

my name is Cyndy and I am 50. I have Lymphangioma on my tongue also. I have been seeing specialists on and off since I was 14 years old. I had it on the right side of my tongue. This started as a small lump and grew progressively bigger until at 14 a specialist advised me to have it removed. 4 operations and 3 laser treatments later the top of my tongue looks almost flat but the underneath I think is growing back slowly. I have recently bitten it and it has reacted in a very big way. This site is quite inspirational in as much that I now know I am not the only one in the world with this condition, but it sure has felt like it over the last 50 years!!! I would be interested to hear from you and help in any way I can.

Kind regards Cyndy Russell
Last edited by cyndy57 : 09-28-2007 at 09:31 PM.
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