Someone please correct me if I am wrong, but I think that if it is fading it is probably a hemangioma. Strange though that you say it has no tecture to it...flat like a pws. I too have had doctors (not ones we are seeing) think my son has pws when it is clearly a huge hemangioma. When it first started to appear it looked like a pws because it was flat and uniform color. Our ped. was sure it wasn't a pws and that it was a h. and after seeing a specialist...we were told it was in fact a hemangioma. It really did not take long (two weeks) to grow out of control and very much did not respemble a pws anymore. It might be a good idea to post a picture of your son on msn. site http://groups.msn.com/vascularbirthm..._whatsnew.msnw
Someone might be able to tell better by pictures? But, I think you are doing the right thing...continue to see specialists until you get an answer you can trust.
Good luck and let us know how the Nov. appt. goes.