I"m new here too.
I have a son how has LM. he has it on his ceek,sholder,neck,down to his longs.
He have no track, but he have a C_pap when he sleep. He is only 2 years Old, and he has been 1/3 off his life on a hospital. there is a good doctor who is helping him, but we feel we need more help. But we live in Norway (5 million people) so there is noet so many off this LM here. Is there some place neer Norway hos is expert on this LM?
Best Regards Fam Cederløv