I am really interested to find out what happens to your daughter - is the surgery being done at GOSH or where? who is doing it? My daughter is 7 months old and she has an H on her left eyelid too - it is affecting her vision too. She had an injection of steroids and a high dose of oral steroids for 3 months but it didnt work, we have an appointment at GOSH soon to see an opthamologist and dermotologist.
Sorry I cant help - but please keep us informed, I'm sure it will be fine.