Vascular Birthmarks Foundation Forum - View Single Post - Lymphatic Malformation of Tongue
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Old 06-13-2008, 03:11 PM
LilyGrace23 LilyGrace23 is offline
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Join Date: Jun 2008
Location: New Hampshire
Posts: 8
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don't give up hope. I fought for 2 years to take me serious and it was well worth it. My son has a very rare form of lymphatic malformations. his is all throughout his chest, near his lungs, and throughout his ribs, he also has 2 tumors in his spleen. I know it is frustrating, there are not a lot of answers but I know that support and kind words can do wonders for the soul. I just found this site today and am overwhelmed right now. I do have the number to the vascular anomolie clinic at Boston children's hospital. they are very kind and will help you in any way they can....They specialize in lymphatic malformations if you have any questions please feel free to ask or you just need support... 617-355-5226
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