thank you so much for all your information, support and your daughter's story. Until last week I didn't realize there were so many people facing similar situations to us. My son was diagnosed 6 yrs. ago with multiple lymphangioma's. through out his rib bones, one that is behind his left lung and is slightly longer than his left lung and 2 in his spleen. we find out tomorrow at boston children's if there could possibly be 2 more in his esophogus.... 6 yrs ago there was no information on the internet and it is a comfort and relief to have all these families come together and be able to talk about there experiences and share information....Thank's to all of you and God Bless!!!