I have an AVM in my left elbow and so far it hasn't went any further then my elbow. Luckily it started showing through when I was around 9 and I had multiple surgeries during my youth. As with you, the first few surgeons had no idea what it was. I am now 25 and the pain has returned. Today I had an angiogram and am awaiting the results. My doc mentioned a doctor in Colorado who specializes in AVM. After research I have found his name is Dr. Yakes and has a very high success rate eliminating AVMs. I have not heard about Dr. Rosen. Where is he from? I would like to research my options before making any decision on what to do.