Vascular Birthmarks Foundation Forum - View Single Post - Rare form of lymphatic malformatiions can anyone relate
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Old 09-25-2008, 11:37 PM
sweet pea sweet pea is offline
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Join Date: Jul 2006
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LMs tend to swell and then go back down(sometimes). So it wouldn't be uncommon for it to swell back up again. I tend to consider LMs like weeds, very hard to get rid of and very pesky. haha. Though it is manageable and your son can live a normal life or close to it anyways. It all depends on the severity of the case. Anywhere you go, there really won't be a lot of info, since many doctors are somewhat baffled by the condition and don't everything about it. I never had problems with mine until the last year or so with severe pain. But I had surgery a few months back and am now pretty much back to normal. Really all you can do is to keep it under control and watch for changes, making sure nothing is too bothersome to him.
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