Thanks for telling this story. I also have a PWS on the left side of my forehead and eyelid and have had a similar experience. No real teasing that i can remember, except in 3rd grade by a 2nd grader...
I can tell that some people are a little uncomfortable about it, but if they stick around to get to know me, they forget it's there--I'm often surprised myself when I glance in a mirror! Or when a little kid points it out.
The hope a dream and the wings to be free