Vascular Birthmarks Foundation Forum - View Single Post - General malaise and questions
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Old 01-12-2009, 08:47 AM
hughes hughes is offline
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Join Date: Jan 2009
Location: Oregon
Posts: 1
Default General malaise and questions

Hi all,

This is the first time I have ever posted in this community, and I suppose you could say I came here out of desperation. I'm a 22 year old female college student with a PWS on the right side of my face. I had about a dozen or so treatments on it from the time I was four to fourteen, and none of them did a noticeable amount of difference, if anything at all. Because of an increasingly busy school schedule and an inability to take ten days out of my schedule while waiting for my face to heal from the dark purple bruises, I stopped doing the treatments and haven't done one since. A couple of months ago, my mother and I went to the dermatologist/doctor (don't know what his exact title is) who specializes in laser treatments in my area, and he basically told us that there was no real new technology and that any treatments I did now would have the same effects, results, and bruises as they did when I was younger.

This was very disheartening. I don't think I can put into words (and in this community, probably don't need to) the vast amount of pain and insecurity that this birthmark has caused me. I truly, truly hate it. I'm incredibly jealous when I read stories of people learning to love their birthmarks because I just don't think that's something I could ever see myself doing. This thing has stolen so much joy from me that I feel like I could have had without it. It dictates an embarrassing amount of my life- whether I not I spend the night at someone's house depending on if I have my makeup with me or not; how long it takes me to get ready in the morning because I have to do my makeup for my birthmark, which washes my whole face out, so I HAVE to do eye makeup as well, when really I like the way I look with no makeup at all minus the birthmark; whether I go to the gym in fear that I will sweat off my makeup.

For some reason, in my entire twenty two years, this whole thing is hitting me very hard in the past two days. I'm realizing how incredibly unhappy this birthmark has made me. I'm wondering if anyone knows anything at all about PWS technology and if there is a way that I could SIGNIFICANTLY reduce the appearance of my birthmark. I'm talking something drastic here; I won't waste my time for anything less than something very, very noticeable. I work and am in school and just don't have time to take ten days out of my schedule for something that's going to lighten my birthmark half of a shade. I know that it takes multiple treatments which I'm fine with, but I've had multiple treatments in the past with no real success. I'm wondering if anyone has had outstanding success with any kind of laser treatment. I'm really at my wit's end here.

Thanks for listening to me and allowing me to rant. Any questions or feedback would be most welcome. Glad I found this place. Thanks again.
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