Vascular Birthmarks Foundation Forum - View Single Post - Facial AVM
Thread: Facial AVM
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Old 01-14-2009, 05:48 PM
juliemn juliemn is offline
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Join Date: Sep 2004
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Facial AVM's are rare. Although my son has some vessels that show AVM characteristics in his face, he has not gone through anything like your son has.

When I first started gathering information, I contacted a mother in New Jersey who has a son with a facial AVM. She was/is a wealth of information. I believe her son must be in his early teens at the moment.

Please email me if you'd like to get in contact with her.
jshiggie@gmail.com

Julie
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Julie H
Mom to Ben (multiple AVM's, PWS, SWS)
www.MeetBen.com
jshiggie@gmail.com
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