Missy - thanks so much for your support and encouragement. I am so impressed with how responsive the expert physicians on VBF are! Within 12 hours I had replies from Dr Nelson and COL Thompson.
The doctor we saw was supportive, although I did have to tactly correct her when she called the treatment cosmetic. She supports us getting treatment outside of China, and I told her we were quite happy going back to the US if necessary in order to ensure we keep him on the right track!
We will know more in the next couple of days - I am so grateful for having VBF as a resource - it helped us 10 years ago when we were beginning treatment for our son!