Vascular Birthmarks Foundation Forum - View Single Post - PWS and possible KT Syndrome - freaking out a little!
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Old 11-03-2009, 03:52 PM
RowdyBliss RowdyBliss is offline
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Join Date: Jun 2009
Location: Delaware
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Thanks, kaykay.

I have an appointment with my new primary care physician (my old one is in jail for fraud! ) on November 19. He has a specialty in internal medicine, so I'm hoping that he'll be at least a little familiar with this. Over the years, I've found that more often than not I have done more educating of my primary docs re: my PWS, rather than the other way around; they've seen it more as a curiosity than something that may require serious medical treatment.

IMHO, I think that calling it a "birthmark" somehow undermines the seriousness of what it actually is. After all, birthmarks are supposed to be harmless, right?

Anyway, thanks for listening. I'm trying very, very hard to not freak out!
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