Please feel free to email me. I would like to know where you are located and see if I can recommend a specialist nearest you that might be able to give you another opinion on your son's hemangioma, CMTC, other vascular issues.
Large hemangiomas can rob the body of nutrients.... and some children may have failure to thrive as a result. I would recommend having this investigated further.
Please see my email below
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)