Does anyone know much about Tufted Angioma and KHE?
My daughter was born with a large size lump haemangioma on her left elbow/arm. She is now 4 weeks old and had biopsy done twice, the results shows she has tufted angioma and bits of KHE so can someone tell me more info about it and anyone who has experienced it.
She is currently progressing well, taking blood tests weekly to check her platelets level, the haemangioma is not getting any bigger and the colour is changing also the edges is fading to lighter colour.
We are new to this and wondering about the treatments how it can affect her. Hopefully someone can tell me more info about it....