Vascular Birthmarks Foundation Forum - View Single Post - Heart Problems and CMTC
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Old 03-06-2010, 01:17 AM
abatie abatie is offline
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Join Date: Oct 2009
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We go back to Mayo on Monday. Becca will be seeing a pediatrician who has interests in vascular malformations and long term care, GI, radiology, ENT, and PM&R. We have our own questions and questions from the Birth to Three therapists. Hopefully we will get some more answers (and probably even more questions). The limb length descrepency is getting much worse so I am hoping the pediatrician will have some answers (he works with KT Syndrome cases so he probably will). The hearing issue is also a real concern. We will update throughout the appointments so everyone can keep up on the findings. You can also check Becca's CaringBridge -http://www.caringbridge.org/visit/beccabatie Watch for updates.
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